My Digestive System Is Behaving! Not So Sure about Us??
It looks like the Gastroenterologist has found the right combination to get my digestive system working again in a manageable way. I haven’t had any pain or bloating now for several days, and I’ve been able to eat some things I wouldn’t have dreamed of trying just last week. I still don’t have an appetite, but I still need to lose weight, too! So I’ll count that as a blessing for right now.
We had our Date Day today, instead of yesterday, because our respite care giver couldn’t come yesterday. We had an enjoyable day together, not really doing much, but just relaxing. With my balance as wacky as it is right now, there’s not much else we could do.
Daddy, DH, and I had our first big flare up of tempers this evening. It was just a matter of time before it happened. We’ve been trying to stall it by getting out of the house a couple of days each week, but it was inevitable.
Daddy hates the idea of having anybody in his house, doing things he would normally be doing, or changing his routines. He’s been independent too long to take easily to having DH and me here, and certainly to having Frances here two days a week. And he hates not being able to take care of himself any more.
We’ve understood how he felt, so we’ve been biting our tongues ever since he fell, as his bitterness shows through in almost everything he says to us. Hopefully this show of temper on all our parts will clear the air for a little while, but that remains to be seen.
So my relaxing day had a somewhat dramatic end, but as thick as the tension has been around here, it may well have been for the best in the long run. I can only hope so.
I too get frustrated sometimes at needing help. I’ve learned over time not to take that out on others- mostly because I I could see how I hurt other peoples’ feelings. Sometimes people just had to tell me how badly I was acting – and as hard as that was to hear, it really helped me in the long run to manage to be considerate. You’re all in my prayers – tough situation.
The frustration my mother feels at her situation, on oxygen and the beginnings of dementia, has shown up in bitterness and anger directed at her family and hospital nurses.
I don’t have to live with it, as she is in hospital, but I imagine the day will come when I will have to put down boundaries. With her present outlook on life, she is hurting many people who don’t deserve her anger. Somehow I will have to make her aware of what she is doing, and it will be soon.
I feel this, just as you did. I hope the “talk” with my mother will do some good!
So happy to know the medication is working!
Ruth, I can see why someone young would feel terrible frustration at requiring so much help. I’m glad you have learned, maybe the hard way, to not take out that frustration on those who are trying to help.
It is a tough situation, and I do appreciate your prayers.
Marion, I don’t envy your situation. With dementia setting in, it may not be possible to reason with your mother. Even if she understands your discussion and improves her behavior for now, it’s likely to regress as she goes further into the fog of dementia.
The nurses should be “immune” to it, as long as they continue to give quality care. Family, on the other hand, will have a hard time with the hurtful words. I know my DH and I did with his Dad, no matter how much we tried not to let them hurt.
Good luck with the new medicine. I hope the transition isn’t too troublesome. You really are doing a valuable service by posting about your journey with Parkinson’s. And I hope continue to get out for those “dates.”
Shelia, those Date Days are a large part of my keeping my sanity, I do believe! LOL
From what I’ve read on the Internet, the only drawback I expect with the Zelepar is that it tastes bitter. Hey, I can go brush my teeth, right?