I feel like I ought to warn you that this post made me uncomfortable to write it, and it may make you uncomfortable to read it. It’s not considered “polite” to discuss bathroom problems, and I understand that. So just skip this one, if you like. I’ll certainly understand. But if you have Parkinson’s, or know someone with Parkinson’s, you might want to keep reading.
My Gastroenterologist has added Miralax to my Zelnorm prescription. He’s recently started me on a regimen of daily glycerin suppository use, too, in what’s called Bowel Retraining. I’ve already been on Metamucil capsules for several months now, and also eating a high fiber bran cereal every morning. The Parkinson’s, or a combination of the PD and my meds, has left me with very little muscle power in my digestive system, plus diminished nerve awareness as well. He says that’s where the bloating, nausea, and gas are coming from.
I am not allowed to have coffee, any caffeine drinks, carbonated drinks, chocolate, any dairy products – including cheese, any citrus fruits or tomato based foods, peanuts, drink liquids with meals, or eat anything within two hours of bedtime. And I’m sure I’m leaving something off the list! It seems like every time I go see him he adds something else to the list, anyway. Some things on the list are for my GERD, and some are for the IBS (Irritable Bowel Syndrome) symptoms he’s treating.
Constipation is one of the most universal symptoms that people with Parkinson’s Disease deal with, but, let’s face it, it’s not something anybody likes to talk about. But I want this blog to be useful to other PWP, so I don’t want to leave out this information, even though I really don’t like coming right out and admitting that I’m constipated. I really didn’t realize I was, as everything seemed OK to me. But it’s obvious to me now, after taking all these high powered medicines he’s had me on lately, that I am, and have been for some time now.
Again, in the interest of being helpful to other folks with PD, I found this really well done site about constipation at MedicineNet.com.
Well, this was not an easy post for me to write, but I hope it turns out to be helpful to someone else with Parkinson’s who’s suffering some of the same symptoms I have been for so long. This is not a battle I have won, by any means. In fact, judging by the lack of success my doctor has had so far in dealing with my problem, I’m probably going to be dealing with this off and on the rest of my life. That’s probably the case with most PWP, as well. If any one chooses to comment, I’d appreciate hearing what you have to say about how you’ve dealt with this problem.