I’ve spent a lot of time today exploring all the neat pages on the PatientsLikeMe site. I received an invitation to join, and now, I’d like to extend that invitation to all of you. It does involve putting in a lot of medical information about yourself, but I’ve already done that here, so I decided that shouldn’t stop me from joining. I’m so glad I did, as I’ve already read some posts on the forum that made me feel less strange and alone. I can see that the aggregation of data they are trying to achieve will be a fantastic tool for research and personal information.
So, here’s the link:
and here’s the personal profile I’ve been working on today.
They have it fixed so you can find all members who have the same symptoms, use the same meds, etc. as you.