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HomeNo Surgery After All!! WHEW!!


No Surgery After All!! WHEW!! — 9 Comments

  1. What great news! How glad I am for you! It must be a great relief, and I feel sure that the diet and what-all you have to follow will direct you in feeling better.

    It took a long time for me to retrain my system, when my diet changed. But I think I felt the benefits fairly soon, within days.

    Good news!

  2. It was quite a feeling of relief, Marion and Ruth, as any surgery is hard on a Parkie. Our brains are already working on a minimum of needed dopamine, so anesthetics can be very hard on PWP for a long time after the surgery.

    I do pretty well with the list, Ruth, except for no chocolate. That one’s really hard!!

    I was so impressed with this new doctor that I’ve had my records sent to him. I won’t be going back to my old doctor. Not because I didn’t like him, but because I don’t want to have to go the hospital he works with.

  3. What a great piece of news. Such a difficult list of “must not eats” but it will be worth it. I’m glad you found a doctor who explained things so well. It must be so worrying when you hear things you don’t understand. Thank goodness your doctor checked on the reaction between your drugs…well done for finding out the information.

  4. That has to be encouraging about not having surgery after all, discouraging about the restricted diet. After prepping for a colonoscopy last evening, I truly hope you don’t have to have that done again so soon. Sorry about the chocolate–that’s a hard one to give up.

  5. I sympathize with what you’ve just been through, as DH and I have lost track of how many colonoscopies and endoscopies we have had. The prep is far worse than the procedure! I hope you get good news!!!!

  6. This is great news. Though your comment about the frequency of colonoscopies is sort of under “wow” – How many is it when a person would lose count? I know I would remember up to about 20 or so. But then I tend to be more obsessive.

    Congrats – bummer about the diet thought. Have you noticed that internet research is like the modern picking of a scab – for me I can’t tell if it make me feel reassured in knowing at least some of what is going on or just drowned under the info.

    By the by – I am VERY grateful about your posts on your bowels – as things like this, which can make life so unbearable, also tend to be the most untalked about. I want to understand the processes in Parkinson’s and this helps me.

  7. I am very glad you stopped by, Elizabeth. I just spent some time skimming over some of your posts on your blogs, and found them to be very articulate and quite interesting. No disability laws in Canada? Odd.

    Anyway, I love your analogy of the scab, and I think you’re right, I do obsess and pick at each little thing, via web searches. But hey, that’s the way I’m wired. And I do appreciate you telling me that my bluntness about my elimination problems is helpful.

    It gets hard sometimes to talk about such things so publicly, and taxes my ability to express myself in a tactful way, but presenting a full picture of what I’m going through is the whole point of this blog. To leave this part of my life out would cheapen the whole thing, in my opinion.

    I look forward to reading more of your blogs and getting to know you!

  8. Zelnorm is still available from overseas pharmacies. I was prescribed it and it worked REALLY well so I was distraught when they took it off the market, so I found it elsewhere. Email me at
    rxmeds (at)
    if you’d like to know where to get it 🙂

    Good luck !

  9. Thank you for the information, Anne. I will definitely want to find out more about it. I’m still waiting for my Gastroenterologist to finish analyzing my intake/elimination log. When I see him, I’ll be sure to ask if he thinks it will be OK for me to use it again.

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