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Day One with Sinemet — 6 Comments

  1. I hope you are feeling much better. I can understand why your doctor wanted you to be checked for an infection – steroids such as celestone tend to lower people’s immune system. Combine that with your PD and it’s a double whammy. Since some of the symptoms you described can be produced by a systemic infection, he did right for checking.

    Good luck with your gastroenterologist. One word of caution – be very careful if the MD wants to give you reglan. It’s a common medication that helps intestinal mobility, but some people have nasty side effects from it (I had a near psychotic break when I was given the med before my gallbladder surgery) When I told my neurologist about it, he said that medication should never be prescribed for anyone with PD – it tends to worsen the PD symptoms, sometimes irreversibly.

    Again, I hope all turns out well for you.

  2. DB,

    I am so thankful that you began a diary at the beginning. I can’t begin to imagine how helpful that must be.

    And I am so glad you are feeling better. What a great thing you are doing, with your site. There is so much good info here, along with the comments from others.

    Keep your chin up!

  3. Thanks for the reminder about the Reglan, Joe. I had found that bit of information when I was learning about Demerol being something PWP can’t have during surgery. It seems Reglan is commonly given for operations to reduce the chance of the anesthesia causing vomiting and aspiration.

    I did not realize that a medicine wrongly prescribed could cause such irreversible increase in PD symptoms, though. All the more reason to do all the research I can!

  4. We had kept journals on our parents as we took care of them, Marion, and had seen how very important they became over time. Being able to show the ER doctor in writing something I had most definitely written over a year ago gave him no reason to doubt that this is what my Neurologist would have chosen for me.

    To his credit, though, he did look up the Lodosyn in his pocket PDR, as he was not familiar with it. It must be rather unusual, as CVS, a giant pharmacy chain, had to order it for me when we filled the prescriptions there, because it was Sunday and our pharmacist is not open on weekends. Luckily, I still had some left from last year to take until we go to town tomorrow.

  5. Have you tried eating a small cracker, not one with protein (such as a cheese cracker) with Sinemet? Initially I vomitted a lot with Sinemet but taking the cracker with it worked like a charm for me.

    Good luck,
    Kate Kelsall

  6. Thanks for the suggestion, Kate. I’m taking the Sinemet with meals for now, just so that won’t be part of the problem. And, thank goodness, I haven’t thrown up again.

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