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This is a Hard Post to Write — 11 Comments

  1. Dirty Butter,

    I felt your devastation when I read your post. I spent so many years in the unknown, that often my imagination would run wild with the “what ifs”. At one time I also had to take a step back and just “wait and see”. I am not the most patient person, so this was difficult to do.

    My thoughts and prayers are so with you right now. I understand exactly what you are feeling.

    Nicole

  2. I think God also led me to your blog, Nicole, at just the right time. Here you are, finally able to “celebrate” that you have plain PD, and not one of the fast progressing variations, after years of not knowing, or being mis-diagnosed. And here I am, in a total vacuum right now, with no idea what in the world is going on with my body, not knowing if my PD diagnosis is right or not.

    I do appreciate your prayers so much.

  3. DB, I’ve been catching up on your news. I feel your devastation,as well, and your self-doubt.It will be a lesson in patience until you can see the specialist.

    It will be good to have that definitive voice added to the diagnosis. It will be a forward move and you will be able to treat yourself with the correct medicines.

    I think this is actually great news; I’m so glad you’re getting a second opinion!

    Merry Christmas, DB!

  4. I waited several months at the beginning of this journey, in order to get to see my Neurologist, as he came so highly recommended. That wait was hard. Now I am waiting to see what everyone seems to say is the best of the best as far as Movement Disorder Specialists go in this part of the state.

    I’m not quite ready to be as positive as you are, Marion. But maybe in a few days I can see it as a good thing.

    And Merry Christmas to you, too!!!

  5. Just think of it as good news. It could be something mechanical with your spine that is causing the neuropathy or a side effect of the drugs. Maybe you should back off the drugs slowly if you can, and see the head doc in all your glory. Drugs can hide things and doctors are not infallible.

    I stopped by to wish you all the best in 2008. Hang in there, girl. The holidays are so stressful. Try to relax and know that you have prayers coming in from many places.

  6. This whole situation started when my Orthopedist sent me to have the nerve conduction test and another test with needles. That’s when they decided I had Peripheral Neuropathy. I do have several degenerated disks in the lumbar and cervical vertebrae, so you may well be right, CC.

  7. Hello friend,

    You might not know what you have but some things we know for sure … you have a kind and gentle way about you.
    you have a wonderful hubby
    and you have a lot of friends!

    Take Care, Merry Christmas

    Tami

  8. I need all the prayers I can get right now, Janey Loree and Tami, so I appreciate your kind thoughts. I’m still mentally and emotionally going around in circles on this whole turn of events.

  9. DB, you are in my thoughts and prayers as well. I too feel that this is a good thing for you!

    Merry Christmas and a Blessed New Year!!!

  10. Rosemary, may I ask what “best as far as Movement Disorder Specialists go in this part of the state” you saw. University of Alabama??

  11. I’m to see Dr. Ray Watts, the head of the Neurology Dept. at UAB. Could you email me the name of the Patient Advocate you know? Thanks for thinking about me, FS!

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