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HomeMyoclonusGREAT NEWS!!! – My New Diagnosis Is ESSENTIAL MYOCLONUS!!


GREAT NEWS!!! – My New Diagnosis Is ESSENTIAL MYOCLONUS!! — 11 Comments

  1. Thanks for your positive support, Caleb!! I hopped over to your blog and left a comment there, too. I really appreciate your kind words. I do hope that something I have written here will be helpful to others who are dealing with confusing symptoms.

    I intend to continue posting, but I am going to have to change the title of the blog in some way, since I am no longer diagnosed with PD OR PN!! ROTFL!!!

  2. This is great news, I’m sure this will be much easier to deal with now that you know what it is! I have created a post on my blog about your experiences. On behalf of the Parkinson’s world I wanted to thank you for your fine documentation, I know it will help many that will go through the same things that you experienced.

  3. Thanks for stopping by, Warrior!! I see from your blog that you have been down in the dumps for awhile, too. I would wish some great news for you, too!!

  4. What wonderful news!! I am so happy for you!!! I know you must be relieved that you don’t have PD and PN, AND you now have an accurate diagnosis.

    It is good to know that your meds are working and you are feeling better as well! Thank you for this blog and let us know more about myoclonus, as I have never even heard of it. 😉

  5. I really was not depressed about the PD diagnosis nearly as much as I was depressed when they did not know what was wrong with me. I am very much the type who can deal with enemies that I can research about and plan for on some level. I do not deal well with the unknown. So God was giving me a healthy dose of the unknown to help me grown my faith muscle!!

    I did write some about Myoclonus, but I will try to do more on it for you and others who might be interested.

    Thanks for stopping by, Mary!!

  6. I just want to say that I appreciate your blog here. I was diagnosed with essential myoclonus about 5 or 6 years ago. I am now 34 years old. At the onset, it was scary as hell. I didn’t know what was happening. It occurs, mainly, in my legs, arms and neck. The 1st dr. I went to didn’t know what it was and put me on Clonazepam. It helped, bt knocked me on my butt. I got a 2nd opinion and that dr. admitted he didn’t know what was causing it and referred me to a neurologist. After MRIs, EEGs, blood work and all that I was finally diagnosed. Zoloft was, actually, prescribed and worked wonders, but I didn’t like the feeling I got on it. I quit the meds was free the “jerks” for the most part. They have come back in the past few years and I’ve learned to deal with them.
    The worst part was not knowing what it was in the beginning. Now that it’s a part of my life, I’ve accepted it. They aren’t bad. It doesn’t prevent me from doing anything I want to do in life. At times, when it does occur in public, it was tough getting a few looks, but, it doesn’t bother me anymore.
    I just want to thank you for blogging this. It’s good to know that there are others. It’s hard to find anything on this topic and I appreciate what you’ve done here. Thank you.

  7. Wow, Nick!! Thanks for sharing your story and for the kind words about my blog.

    I couldn’t deal with the facial tics at all, plus I had trouble walking. I am not one to be comfortable around people, anyway, so it just made me way too self conscious, not to mention I was going to fall if I didn’t do something.

    More power to you for being able to cope with the Myoclonus without medicine.

  8. Thank you. It isn’t always easy. Really becomes apparent when I’m really emotionally stressed or really lack sleep.It was bad the last couple weeks, but has gotten better the last few days. More an annoyance than anything. I wish you all the luck with dealing with it.

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