I Will Go On by Dr. Daniel Brooks
Dan Brooks has written a book about his fight to preserve himself as his body deteriorates, I Will Go On, and I bought it the other day on Amazon. I’m glad I did.
One of the best things about blogging is getting to know people you would never have the opportunity to meet otherwise. I have been following Dan and his journey through his aggressive form of Movement Disorder for some time now on his blog, and I’m always encouraged and uplifted by his strength of character and determination.
I’m not too far into the book yet, but I can tell you right now that it should be required reading for anyone who is facing Parkinson’s, and for their care givers, and certainly for those who appear to have one of the rarer forms of Movement Disorders that have Parkinson’s symptoms plus other brain dysfunction symptoms. For those like myself, who have a mild form of a Movement Disorder, it helps to put my minor problems into perspective. For those with rapidly worsening symptoms, it gives a vivid description of his progression and determination. It is a scary read in some ways for me, but I know from personal experience that even a bad diagnosis is better than the awful unknown of enduring test after test and doctor after doctor with no idea what is wrong with you or how to treat it.
I hurt for Dan as I read it, but it’s hard for me to put the book down. I want to know more about this man I have come to love and respect via the internet. I think you’ll find that true, as well.
That's a book I'm going to have to check out, right along with the two books written by Michael J. Fox. I'm new to your blog–I've really only read this one posting–so I'm going to ask what your movement disorder is. Not that it matters. I suffer from young onset Parkinson's and I can be sure that any movement disorder sucks.
Thanks for stopping by, Jon. I'm one of the lucky ones. Although I was originally diagnosed with Parkinson's, my diagnosis was later changed to Essential Myoclonus. This Movement Disorder is not as progressive a disease as PD. And PD is not as aggressive as whatever form of Parkinson's Plus Dan has.
I'm sorry to see that you have young onset PD. You will find most of my posts that would benefit you back in the older posts, when I was dealing with all the PD symptoms and frustration of the meds' side effects and my lack of improvement.
The MDS team who correctly diagnosed EM literally gave me my life back. I can't praise God enough for all my blessings!
I used to follow Dan Brooks's Blog and I am unable to access it. I was wondering why I can't access it.
Blogger shows it as no longer available. I know he had quit adding new posts to his blog, but I didn't think he meant he was going to delete the blog. I did find a copy of his last post.