Praying the Depakote Works
I heard from my Neurologist Wednesday, and he’s trying me on Depakote, instead of the Neurontin. So far I’m not groggy, but I’m still jerking. Hopefully not as bad as I was, though. Today should be the test of it, as it’s had time to get fully into my system now. So, we’ll just wait and see. It does have some possible side effects that aren’t good, such as weight gain, so I’ll have to start weighing regularly again. And watch what I eat, too, as I had been splurging a good bit lately. But I’m not counting Thanksgiving.
It’s strange how they attempt to medicate the symptoms of Essential Myoclonus. Both of my meds, Primidone and Depakote, as well as the Neurontin he took me off of, are anti-seizure meds. But the EEG showed that I’m not having seizures. They really don’t know how these meds work for some people, and for that matter they don’t know what causes EM, either.
We had an enjoyable Date Day yesterday, going to the Galleria and walking around, mostly to see the Christmas decorations. But it’s not like it used to be. There were only token, if any, decorations in the stores, and they didn’t have a Santa in the mall, either. It’s sad to see how “politically correct” everyone’s become, but they sure want our money! But the mall itself was pretty, and the walking was good for me. And we did get some shopping done, but not at the Galleria! Hurray for “dollar stores” (I can remember when they were 10 cent stores)!!
I’ll try to get some more housework done today, and I’m praying that the Depakote works. My walking is still very unsteady, but that may be from lack of enough exercise. Might as well get a clean house while I build a few muscles, eh?
I hope you all had a wonderful Thanksgiving, as we sure did. And I’m thankful that my Neurologist does have some choices for meds to try for me. I pray that he finds the one that stops the jerking.
Thanks be to God for all his unspeakable gifts! He has blessed us in so many ways, particularly that my wonderful hubby is here by my side to help me in any way I need. I don’t know what I would do without him. I love him so much!!
I pray that you keep Christ as the center of your Christmas giving and celebrating, and that you and your family enjoy His Blessings during this holy time of year.
The Neurontin just made me way too zonked to function when he upped the dose to where it stopped the jerking. I'm glad it's helping you with your neuropathy pain. I've been very fortunate that my pain is limited to muscle aches where the jerks go on for hours at a time.
I've never tried going off my Primidone to see what I would do. Too afraid, I guess. At least you found out you really need the Neurontin.
I hope you and your family have a wonderful Christ filled Christmas, Karen.
Hi DB…Sorry to hear you're having difficulty finding a med to help your symptoms.
I take Neurontin it is great in helping with neuropathy. I also don't have seizures; however, Neurontin works by blocking the nerve receptors. It is odd that it works for some and not others! I recently went off my neurontin curious to see if I had any pain improvement…Needless to say I am back up to 300mg a day…I take 100mg in the morning and 200mg at bedtime.
I hope you get the relief you so deserve my sweet friend. God bless and keep up the continued positive outlook!
Hugs always btrflynana