Still Being Poked, but Optimistic
Well, I was hoping to wait until I had something definite to add, but it looks like that’s not going to happen any time soon. Since I’ve written last I’ve had two more sets of liver enzyme tests with varying results, but still high. I’ve been to the Endocrinologist, and he’s run all the thyroid tests again and done an ultrasound of my thyroid. He is satisfied that all is normal there. The liver biopsy results came back normal. So far so good.
But, I asked at my last Gastro visit if muscle atrophy could cause the liver enzyme numbers to be high, based on some information I found on the internet. So he added a Creatine Kinase test to the orders for the liver function panel, and the CK numbers were elevated. I’m not sure yet what that means, as I’m having a routine colonoscopy this week and won’t see my Gastro again until the followup appointment for that.
I’ve decided that the variation in AST and ALT numbers I keep getting is determined by how much walking I’ve done prior to the test. When I had to walk a long way to the lab the numbers have been higher than when it was close by. I really do think all the abnormal numbers have something to do with whatever is making my walking so labored and oddly gaited.
I have a feeling I won’t get any answers until I see the Neuromuscular Movement Disorder Specialist at UAB in October. But at least we’ve ruled out several things that could have caused this weakness.
I’ve finally reached a point that I’m no longer worried about them finding some horrible something wrong with me, and I’m very thankful for that. I am not as weak as I was back in March when this all started, and I’m VERY thankful for that. I feel good enough to have made a dent in the backlog of work that accumulated when I was so very weak, and that helps my outlook, too.
I’m thankful to God that most of the scariest possibilities have been ruled out, and I’m no longer anxious about the final results of all this testing.
I really appreciate your friendship, Anji! Thanks for your concern. More tests this next week about the high CK numbers, so still being poked! LOL!
They are certainly putting you through some tests. Good news about getting some of your strength back.
Thanks for your prayers, Don! They are very much appreciated!
Yes, they have ruled out some pretty scary things. More tests this week and then the Neuromuscular specialist in Oct.
Being poked is paying off though! You are finding answers as to what this is NOT, which is almost as important as finding out what it IS!
Glad to hear that some of the scarier options are gone through these test!
You are in my prayers!
Don