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I Have Mitochondrial Myopathy — 2 Comments

  1. Sorry it took me so long to reply. Your comment notice must have ended up in my spam folder.

    We are relieved to have a dx, even though it would have been better if there were a treatment for it.

    I've joined MitoAction, MDA, UMDF, and found a great Mito Adults and a MITO Support group on Facebook. I tried mitooldies, but I don't like that format. FB suits me better.

    I'm not much for socializing and certainly not up to traveling. I have received notice of a more local support group social and am trying to convince myself to attend it.

  2. I am so sorry for you!!! But in away I am very happy you found out the cause of all this! You got your results back quickly! Good for you!! I am hoping all the best to you from one mito to the other mito. Are you on mitooldies? or FB? Will you be going to DC this summer? I am a leader/ambassador for UMDF now.

    Always the best,
    Missy Leone

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