Sharing My Story
There’s not much about me that I usually care to share, as I’m pretty much an introvert in real life. Friends ask me, “How are you doing?” I usually answer, “I’m OK” when I’m really not. But I’m a lot more honest online about my MITO story.
I’ve been blogging since way back in 2005. I added this blog when I started having serious problems with walking. At that time I was diagnosed with Parkinson’s Disease. And this blog won awards as a top Parkinson’s blog for several years.
Turns out I didn’t have Parkinson’s Disease after all. I was eventually diagnosed as having a Mitochondrial Disease, which is a genetic disease. It’s not “catchin'”. Each cell contains the mitochondria, which transform the energy of our food into energy the cell can use. They are like the spark plugs of an old car. No matter how high octane the fuel is, if the spark plugs are defective, the car chugs along poorly. I do my best to put high octane fuel in with Super Foods, but the defective Mitochondrial DNA don’t allow my muscles to work properly.
This blog is where I journal about my MITO story, ever since that first wrong diagnosis. I try to tell it like it is. So you’ll hear the real me speaking in the entries here. When I was first diagnosed with Adult Onset Mitochondrial Myopathy, I didn’t find anything about what it was like on a day to day basis to actually LIVE with an invisible debilitating disease. So I’ve kept this diary to help myself deal with the emotions, the frustrations, and the pain… hoping it would also be of help to someone else dealing with a similar situation.
Spending Time on the Computer
My muscles tire very easily. That limits how much activity I can do all at once. I’ve recently started using a health protocol called The Energy Blueprint* and beginning to see good results with the strategies I’m using so far. That includes very gradually increasing my activity level. But I still spend a lot of my day sitting at the computer.
I run an ecommerce site, selling soft animals and dolls on our Plush Memories Lovie Shoppe. I also run, with the help of several other admins, our free Plush Memories Lost Toy Search Service on Facebook. And from time to time I work as a Moderator on the CubeCart forum, since our stores are built with that Open Source software.
Our original Plush Memories website still has all the old posts, images, and comments to help people who are searching for lost toys. Not only the photos, but the brand information will be useful for many years to come. And I have added quite a few posts that might be helpful to anyone who cares about plush animals and dolls. And I have two live blogs I don’t do much with any more: my blog of personal memories and commentaries about past times at Yesterday’s Memories and another blog about the process of building our plush store.
All my sites are in some way meant to help people, because I believe my Christian purpose is to be a helper. And now that I can’t be as active as I’d like, I’ve found ways to do that online. I hope my MITO story will help you in some way.