Struggling through Sunday

Posted on by August 21, 2006  

There’s something about Sunday that just exhausts me. It starts with the special Sunday breakfast with Daddy. That takes more standing on my feet than the normal one does, but it’s part of his routine, and I don’t want to change that. Another thing that contributes to my problems on Sunday is the shoes. They don’t give me any support. By the time I’ve walked from the car to the SS room, I’m completely exhausted. I do get awfully nervous teaching, although it was better yesterday. D will be teaching full time, starting Sept. 1, so I won’t have that to stress me out any more, except for substituting when she’s sick. That’s for the best, I’m sure.

I sit at home all day long, so I don’t know why sitting in church should tire me out, but it seems to. The pews just aren’t as comfortable, I guess. Anyway, I end up taking a nap every Sunday afternoon, just worn out. I didn’t even feel like driving DH to Deacon’s Meeting yesterday, so he took me to Daddy’s and then came to get me and took me home before he went back for church last night.

My legs, shoulders, and neck were hurting by nine o’clock last night and I had the beginnings of a headache, so DH set up the vibrating pillow and I took 2 of his Tylenol arthritis pills and went to sleep for the night. I feel better this morning.

A Personal Journal

Posted on by August 21, 2006  

I’ve been waiting for six weeks to see Dr. S to find out what he thinks is wrong with my legs. I tried to remember everything I could that he might possibly need to know about my past history. I still forgot to tell him about the Bolt Factory and the functional dysphonia diagnosis I had before I quit teaching. I also forgot to tell him that I taught Chemistry for a few years, but I really don’t think that has anything to do with it at all. I did give his nurse my notes about that when we took the old back films to them. But I’m still forgetting to tell them about Uncle Bill!!

He did the kinds of hammering around that I expected and said that I definitely had diminished responses in my legs, but the upper body responses seemed normal. He was sorry that the EMG I had already had did not include any tests of the upper body and wants to repeat that test. He watched me walk, asked DH if I were that slow with everything I did, which I’m not. I did tell him I feel the shakes at times with my hands. I definitely have trouble handling pills and money, and my memory is not as good as it used to be, either, but then I’m not as young as I used to be, either.

I told him about the MRI Dr. Stan had done years ago that showed increased CSF pressure and the negative Babinski test, so he wants a repeat of the brain MRI.

He showed us what a Parkinson’s walk typically looks like, and that’s not what I’m doing. I’m not walking like the typical Peripheral Neuropathy either, so that’s the puzzle of it. I told him about my concerns that it might be psychosomatic from worrying about DD so much and being with her through all her PN hospitalizations. He said that would be the diagnosis of last resort, if I understood him correctly.

Anyway, now I’m trying to be patient while HealthSpring takes their beaurocratic time processing the request for a brain MRI and a repeat of the EMG to include the upper body as well. He wants to do a series of blood tests, too, to check for B12 deficiency and toxic metals I’m guessing.

I liked him and I have confidence in him.

New Blog with Beta Blogger

Posted on by August 20, 2006  

I thought I’d give the new Beta Blogger a try with a new blog about my problems using my legs. You’ll see me trying different templates and doodads as I fiddle with this new system. From time to time I may do a post about what I’m trying out with the beta.

But mainly, I wanted a place to talk about the strange goings on with my walking. Just a little background material. I do have an old herniated lumbar disk that flares up and causes trouble from time to time, and I have spurs on some cervical vertebrae that also give me fits at times. I’ve had numerous epidurals over the years for both. There have been several episodes when my back was hurting, as it was this last year, when the sciatic nerve was involved, where I had trouble walking. Every other time, the walking improved and went back to normal with time when the back healed. It didn’t happen that way this time.

After the series of epidurals took care of the back pain in April, I still have not been able to take a normal step. Every step is like picking up lead weights, and it’s all I can do to move my feet. There’s no pain, but it doesn’t take much walking to exhaust me completely. So, mostly I’ve been sitting and working on the computer for the last few months, waiting for doctor’s appointments, first with the orthopedist, then with the EMG tech, and now with the best Neurologist we could find.