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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: Aclovate

Busy Day Yesterday & Today

Day by Day with a Movement Disorder Posted on February 10, 2009 by DBMay 24, 2016 2

We were very lucky to find a Walmart that actually had the Acai on the shelf. Since it has become the new diet craze to use Acai with a Colon Cleansing routine it’s been hard to find. I think I can thank Oprah for that. LOL!

Anyway, since we now have a 6 month supply on hand I don’t mind taking 4 gel caps of it a day. I am going back to eating a little something when I take it, though, until I’m sure that it doesn’t irritate my stomach lining.

We were also able to buy 5 bottles of MiraLax at CVS for a considerably reduced cost, which will be 2 1/2 months worth for me. That is actually the most expensive medicine I’m taking now. It was much cheaper for me when it was a prescription, as my insurance was picking up a large part of the bill, but I’m sure there are a lot of people benefiting from it, now that it is OTC.

I had my yearly appointment with the Dermatologist yesterday, which went quite well. It makes me very nervous, and the stress is not good for me. But he found nothing suspicious. He has prescribed Aclovate ointment for my severely dry skin and a few patches of what he called eczema. All I could think of was great … another prescription. But I will fill it and use it sparingly on the worst places. I’m leary of using too much at a time, because it is a steroidal suspension. I have learned to be very cautious about steroid meds since my horrible reaction to Celestone when I was on PD meds.

So, first thing I did today was to do a drug check to see what the side effects and warnings were, and also to check for drug interactions. It came back OK on the drug interactions, and the cautions had to do with thickly applied ointment, particularly if it were bandaged. I won’t be doing that, so I should do just find on it.

We hit three different Thrift Stores while we were using the gas mileage and found quite a few nice lovies to add to our Plush Animals Shoppe catalog. Of course I can’t wiggle my nose and get them online, but I’m making progress slowly to get our inventory online.

I continue to do my morning exercises, and managed to do three sets today, using the 3.5 pound weights for the last set. I also used the trekking poles to walk around the house a few times this morning and stayed on the mini trampoline for 20 minutes. I’m really pleased with my improvement on the exercises, but I am not yet seeing it translate to a more fluid gait. Patience … patience.

We spent some time today trying to get all the business paperwork together in preparation for doing our taxes. That’s one chore I still do, because I am used to the TaxCut software. Hubby’s made tremendous progress this last few months in his use of the computer, but taxes would be a little too much for this year. By next year, if I need to turn it over to him, I feel sure he will be able to do it quite well. Hopefully I can continue to do this, as it’s a good way to keep my mind sharp and also keeps me aware of where I money is going. This last year was the first year of our married lives where hubby took care of all the bills all year long.

Add in a few posts to the Lost Toys Search Service, and it turned into a very productive day. Now today I’m getting ready to take a bunch of photos to start on another page of our Shoppe catalog.

I’m proud of my efforts and increased activity level, and look forward to improved health.

Posted in Quality of Life | Tagged Acai, Aclovate, Dermatologist, drug interaction, exercise, Income tax, Miralax, shopping, steroids | 2 Replies

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