Tag Archives: Amitiza

No Surgery After All!! WHEW!!

Day by Day with a Movement Disorder Posted on by 9

I made the rounds of my doctors again yesterday, and the specialist my Gastroenterologist sent me to does not believe that my situation warrants surgery at this time. He would rather I continue to use all of Dr. B’s arsenal of Bowel Retraining routines – glycerin suppositories daily, Milk of Magnesia every couple of days, bran cereal and prune juice daily, Miralax, and Amitiza. He also went over the list of what I can’t eat again, and it seems to get longer each time I see him.

I’m not allowed to have

soft drinks of any kind
chocolate
nuts, particularly peanuts
any dairy products at all
cruciferous vegetables, such as broccoli or cabbage
beans
tomatoes
coffee
caffeine of any kind

And no telling what else that I can’t think of right now.

It’s hard to believe it takes all that to keep my system from bloating, but it does. Zelnorm was much better than Amitiza at producing a stronger muscle contraction through the digestive tract, but I’ll just have to make do with the Amitiza, and hope they find a way to modify the Zelnorm and get it back on the market.

There’s now an agreement among the doctors that my elimination problem is due by and large to the weakness of the digestive tract muscles, caused by the Parkinson’s, rather than the anatomical problem that was recently discovered.

I liked this new doctor. He explained things very well, and took a lot of time with me. He explained why he thought surgery would be unlikely to have much of a chance of improving things at this time, and he also gave me some idea of what to watch out for, in case the problem worsened. I will see him again in 6 months, assuming all goes well.

I saw Dr. B, my Gastroenterologist, too, and he wants me to use the full complement of Bowel Retraining strategies for a week. If I am still bloated and having problems with gas and elimination, he will do another colonoscopy. I had one a year ago, with no polyps or other problems, so he really doesn’t expect to find anything. But he knows I’m concerned, and the colonoscopy will ease my mind.

So, with no surgery in the near future, I can stop spending so much time on the computer, reading everything I could find about this problem. I really was beginning to obsess over it, but I learned a lot. I was extremely pleased that the surgeon pulled out his huge PDR and looked up the interaction between Zelepar and Demerol as soon as I mentioned I had read about it. He agreed that I could not have the Demerol if I had the surgery. I will DEFINITELY have to get something in my wallet TODAY to that effect. If I somehow ended up in an emergency room, needing immediate surgery, my own meds could possibly kill me!! So, doing the research was worth it, if only for learning that one piece of information.

Hopefully this is the last time for a long time that I need to discuss my bowel habits LOL!! I’m sure anyone taking the time to read my posts is tired of hearing about it, as I’m tired of having to deal with it, too.

Cortisone Shot Again

Day by Day with a Movement Disorder Posted on by 2

I went yesterday and got another cortisone shot in my right knee, and I can already tell that it’s beginning to help. The Orthopedist says he doesn’t like to do them more often than every 3 months, so that gives me some idea of how long I would need to wait until I could have it done again. I was doing OK on this last shot, until I did too much packing of stuff of Daddy’s, which involved squatting down. That’s just something I can’t do anymore, not only for the knee’s sake, but also for other problems I’m having. I’ll just have to do all the other exercises for my knee that the Physical Therapist gave me, and leave that type of exercise out of my routine.

It’s just too hot to walk at the track right now, with 103 yesterday. Even at 5:00AM it’s just too hot and the air quality is too poor to be out there, so we’re exercising in the house to some videos. Well, hubby is following the video, and I’m bouncing very carefully on the mini trampoline at the same time.

I noticed a vague nausea last night after supper again. The same thing happened night before last, but I’m not sure where that’s coming from. The Amitiza I’ve just started on is bad about that, so that may be what’s going on, or it could be the elimination problem I’m having causing it.

The steroids always make me not sleep, even before I had trouble with insomnia, so I managed the C-pap until about 1:00AM and then I just couldn’t get back to sleep with it on. I was pleased I got by with it that long, knowing how the steroids do me. I will get used to this thing … I will get used to it!! Just have to keep telling myself that, and take each day at a time.

6 Doctor Visits in 6 Days!!

Day by Day with a Movement Disorder Posted on by 4

We have kept the roads hot this week, going from one doctor to another, even seeing two doctors twice. But at least I have a better idea of what’s going on with several different problems I have been having. I saw my Gastroenterologist twice, and now he has me scheduled to see the doctor he wants me to use for the surgery I need to correct the problem with my digestive system. I was really upset about having to have surgery at a hospital I don’t like, if my own doctor performed it. Now I can quit stewing about that. Dr. B solved that problem by telling me that he coordinates for this surgery with this particular doctor, who uses the hospital I like.

I saw the Sleep Specialist twice, too. The nights at the Sleep Study were not pleasant, as I was very uncomfortable in the bed, and the thing they had in my nose felt horrible. Halfway through the night, I got so upset about how miserable I felt that they changed to a different type of mask, and I got through the rest of the night fairly well. Tonight will be my first night to sleep at home with the C-Pap. Wish me luck!!

The tick bite looked really fierce for a few days and itched something awful, but now that I’ve been on the antibiotics since Friday, my left knee no longer looks like it’s getting worse, and has stopped itching.

The Amitiza has turned out to be a good substitute for the Zelnorm that was taken off the market. I’m very pleased with how much it is helping with the constipation problems.

I’ve been reading everything I could get my hands on about the surgery I am to have, and I discovered that I cannot have Demerol if I stay on my Zelepar. I talked to the Sleep Specialist Doctor about what I would need to do about the Apnea when I have surgery, and I talked to him about the Demerol interaction I had discovered. He suggested I might want to tell them that I was allergic to Demerol, so it would be marked clearly on my chart and they wouldn’t dare give it to me. The combination is extremely dangerous, so I might as well be allergic to it, right???

Now the only thing left to do is to make an appointment with the Orthopedic doctor, so I can get another cortisone shot in my right knee, which has arthritis in it. I don’t want to be hobbling around the way I am now, trying to recuperate from major surgery!

Things Not as They Should Be

Day by Day with a Movement Disorder Posted on by 4

Well, I was right. Something is wrong with my elimination anatomy. I saw the Gastroenterologist Tuesday, and he sent me to another doctor, who found the problem. This doctor is not giving us a high percentage of likelihood of being able to fix it, though. He’s sending his findings back to my Gastroenterologist, Dr. B, and I have another appointment with Dr. B next Tuesday. I really don’t see much choice but to have the surgery that may repair the problem, even with less than best odds. Not exactly the news we wanted to hear.

Dr. B did give me some samples of Amitiza, the prescription that is replacing the Zelnorm I was taking for the problems with my digestive muscles not working properly, until it was taken off the market. From what I’ve read it nauseates some people horribly, but I’ve been lucky. So far, no problems taking it. I can’t tell yet if it is going to be helpful, though.

Now, this evening, I found a tick on the side of my knee, and the bite area has a red ring around it. According to what I’ve been able to find, that means I’m headed to the doctor tomorrow, possibly to start a round of antibiotics, as this apparently is a symptom of Lyme Disease.

What’s the expression? When it rains??????