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My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Home→Tags Bachmann-Strauss Dystonia and Parkinson Foundation

Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: Bachmann-Strauss Dystonia and Parkinson Foundation

DYSTONIA – One of the untold number of MOVEMENT DISORDERS

Day by Day with a Movement Disorder Posted on August 16, 2008 by DBDecember 17, 2021  

I wanted to pass this comment along, so more people will be aware of Movement Disorders in general, and particularly here about Dystonia.

I am working with the Bachmann-Strauss Dystonia and Parkinson Foundation to ensure that more research is done to find the cure for Dystonia.

Christian Hoff, Tony Award Winner from Jersey Boys, teamed up with The Bachmann-Strauss Foundation to speak out about Dystonia and filmed this video.

Anything you can do to help would be much appreciated, whether it be a story or even just a link to the video. Thank you so much!

Best,
Catherine

Dystonia is not what I have been diagnosed with. The current diagnosis for my Movement Disorder is Essential Myoclonus. I am very fortunate that Primidone does a fairly good job of controlling my symptoms. But I can certainly relate to anyone whose body simply will not do what they want it to do.

I looked through quite a few other YouTube videos, and this one shows a lady living with Dystonia, but I liked the video because it is very positive.

Posted in Myoclonus | Tagged Bachmann-Strauss Dystonia and Parkinson Foundation, cure for Parkinson's Disease, Dystonia, Essential Myoclonus, YouTube | Leave a reply

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