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My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: cold intolerance

Cold Intolerance

Day by Day with a Movement Disorder Posted on November 18, 2017 by DBOctober 10, 2019  

I have had a problem with extreme cold intolerance for years. We bought The Energy Blueprint* program to learn strategies to increase my mitochondrial energy. The doctors told me in 2011, when I was diagnosed with Mitochondrial Myopathy, that there was no treatment and no cure. My Neurologist suggested several supplements that might help, and I’ve been on them for years. But I’ve continued to have very low energy and poor muscle strength all those years, too.

I’m ecstatic that I am seeing so much improvement in my energy level and cold intolerance now that I’ve implemented just some of the EB strategies!

Sunbathing and Sauna

The most surprising lifestyle change I’ve made is to start sunbathing at midday! So my normal habit has been to wear a long sleeve jacket year round – in the air conditioned house and outside of the house. That was even in the Alabama Summers! I was miserable all Winter.

So this pasty white old lady bought a bathing suit. I started to lay out in the sun super slowly – maybe a minute to a side to start with. It took a while to work up to the 30 minutes I can now enjoy. And, just as the program explained, it has given me a tremendous amount of energy. And, for the first time in my life, I have a tan! Someone at church complimented me on wearing makeup (I do not). I laughed when I told her it was my tan.

When sunbathing is not possible, thanks to the weather, I have a DIY sauna setup in the bathroom. I use three RubyLux 850nm infra-red bulbs and a small ceramic heater. It doesn’t help with my tan, but it is supposed to be energizing. The process is called photobiomodulation. The heat feels great, although I’m building up gradually. I sure don’t want to get burned. I’ve worked up to about 15 minutes a day. I don’t sweat, even though the room gets up in the 80’s, and I exercise some while in there. Ideally the room should be much hotter, but it’s make-shift at best. Sweating is one of the ways to get toxins out of the body. So I’m hoping with time I will start sweating again and get more benefits.

Cold Intolerance

I wasn’t expecting to see a difference in my cold intolerance, but I’m making progress. I don’t have to bundle up with a blanket all the way to my chin to sit through church every time any more. Oh I still wear thermal underwear and double socks for church. But now I usually only drape the blanket across my legs to block the draft under the pews.

It remains to be seen how I do during the cold Winter weather. I am still walking in the mornings, if it’s not raining. Previously I would never have even considered being outside in 60° weather for any longer than absolutely necessary. I was always in a hurry to get to and from the car. Now I can walk about a quarter mile, even in the cold air. That’s a gigantic improvement for me.

I continue to praise God for His healing Hand, for leading us to this program, and for the wonderful joy of feeling better! And I hope to continue learning more ways to improve my quality of life.

Posted in Quality of Life | Tagged cold intolerance, energy, MITO, Mitochondrial Myopathy, photobiomodulation, sauna, sunbathing, The Energy Blueprint | Leave a reply

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