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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

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Slept All Day Yesterday

Day by Day with a Movement Disorder Posted on January 11, 2008 by DBJanuary 11, 2008  

I overdid it. We have been going more and more to fresh foods, mostly raw, for lunch. Our salads have been getting larger, while the amount of cooked vegetables has been decreasing. We’ve also had a few smoothies, including one the other day that was a total disaster. I made myself drink about 6 oz of it, because I just couldn’t stand the thought of wasting all that food. Well, if I ever make one again that tastes yucky – it will make great compost!!

I was bloated on Wednesday morning, and I didn’t feel like exercising at all. I did a little moving around, but quit about half way through the video. But I felt OK as the day went on. I should have paid attention to my body and gone back on my strict safe diet and the bowel retraining regimen I have used in the past. But I didn’t listen.

By that night, I was nauseated and so uncomfortable that I used a Phynergan suppository and went to sleep early. I woke up about midnight coughing uncontrollably from acid reflux, so I started sipping on liquid Gaviscon to calm down my esophagus.

I slept until my medicine alarm went off at 5:00AM, was so groggy that I took the Zelepar and went right back to sleep. I kept on waking up for meds and going back to sleep most of the day. I went back to using the glycerin suppositories, too. I cut back on medicines to only those I thought were essential, and only had a couple of lightly buttered English muffins to eat all day. I managed some chicken soup for supper, and then slept all night again.

Surprisingly, I felt OK this morning. But I will be extra careful with my meals for the next few days, and will be using the glycerin suppositories again for awhile. My Gastroenterologist explained to me that I feel like that when I am constipated. The fact that I am still going to the bathroom doesn’t matter, if I am not eliminating enough to keep my colon working properly.

I went for my Physical Therapy this morning, as usual, and we even did a little traveling for our Date Day. There aren’t very many Estate Sales this time of year, so we ended up going to just two. Neither one of them was very interesting, but we did find some old toys that will pay for our day out, anyway.

I feel fine as I write this, but I had become complacent, I guess, since it had been so long since my tummy has bothered me. I learned my lesson this week.

Posted in Uncategorized | Tagged bloating, Bowel Retraining, diet, elimination difficulties, Friday Date Day, Gastroenterologist, GERD, nausea, Physical Therapy, stomach | Leave a reply

First Physical Therapy Session

Day by Day with a Movement Disorder Posted on January 2, 2008 by DBJanuary 2, 2008 7

I went back to the same PT I have used before, and I was fortunate enough to get the same therapist. She asked lots of questions about what brought on the stiff and painful neck. She manipulated my head, and we chatted a bit about how my diagnosis got undiagnosed. I gave her the link to Patients Like Me, and I hope she takes me up on the invitation to join.

She seems to think that the electrical stimulation (TENS) and ultrasound will help these muscles relax, and she expects to do some stretching exercises on Friday. Bless her heart, but she remembered that Friday was our Date Day, and apologized for messing it up. But DH will be fine with that, as this is only for a few weeks.

We did something this afternoon we have never done before. I made a smoothie! Hubby bought me a blender for Christmas, because I had said something about wanting to try some. I mixed a banana, raw spinach, a little parsley, some soy milk, and a touch of honey, and we both tried it. It wasn’t half bad, and we both drank it all. Not bad at all for my first attempt.

It always makes me feel better when I feel like I am taking control of a situation, and getting the PT started and learning a way to improve our nutrition is a good start for one day. Yippeeee!

Posted in Uncategorized | Tagged diet, exercise, muscle spasms, pain, PatientsLikeMe, Physical Therapy, TENS, ultrasound | 7 Replies

I’ve Been Busy, Busy, Busy!!!

Day by Day with a Movement Disorder Posted on December 6, 2007 by DBDecember 6, 2007  

I’ve been so busy I hadn’t even realized how long it had been since I posted here. This is our busy time of year for selling on eBay, so I’ve been spending a lot of time taking pictures, writing descriptions, and packing items to ship. Hubby helps a lot with the packing, and he goes to the PO with them, but the photography and anything computer related is up to me.

I also have been very busy on the Plush Memories blog, because so many people have written wanting help finding their child’s lost lovey. It feels so good to actually help someone, and I have had some successes lately. But right now, I have something like 70 or so requests that I haven’t posted yet. Every time I open my email, there are a few more requests. It’s almost like being Santa, getting all the letters. But I’m not magic, and there are only so many hours in the day that I can give to it.

I am still sleeping a good 7 to 8 hours a night now. My alarm watch is waking me up at 5:00AM most mornings now. That’s made a huge difference in how much energy I have, and I’m not even dropping off to sleep in the car like I had been. I haven’t had the nerve to drive again, though. I have mentioned it to hubby, but he just doesn’t answer me. Not so sure he thinks it’s a good idea.

The elimination problems have improved slowly, and the Bentyl, prune juice, extra Metamucil, and the Glycolax are working. I bought a couple of books about IBS, and I’m trying to change some more of my eating habits, too. I had already made some huge changes over the last few years, thanks to the GERD. But now, my diet is even more restricted than ever. I eat the forbidden foods from time to time, like pizza, but I do it knowing that I can expect to have consequences. And I give in to the chocolate craving every once in awhile, as it’s the best cure for being upset that I have ever found. Yes, I am addicted to chocolate!!

Wearing the Skechers shoes helped last Sunday, and I was not anywhere near as unstable in them as I have been in my regular Sunday shoes. They’re not the kind of shoes anyone would normally wear with dress up clothes, but they are unobtrusive.

I’m to have a stand up MRI soon for my neck, as the pain and stiffness have not gone away at all. I’m waiting right now for my insurance to approve the test. The muscle relaxer and anti-inflammatory have not made a dent in my neck situation. The X-rays show the degenerated disks, and my Orthopedist knows about the problem I had with the Celestone. He said I may have to go off the Zelepar long enough to have the epidural in my cervical vertebrae. He said I would need to talk to the Anesthetist and work that out with him. Sounds fine to me!!!! If the epidural doesn’t work, the only thing left would be some form of surgery, and that I will avoid as long as possible.

Hubby’s sciatic nerve problem has flared up again, so he doesn’t feel like going to the track to walk. So I’ve been getting most of my exercise by working in the yard. The Lasagna Compost is still growing, one pile of wood chips, fertilizer, kitchen scraps, and dirt at a time. It sure is tempting to turn the pile to see if it’s working, but I have resisted the urge so far. I work in the yard several days a week for over an hour, so that’s good.

So, I think I have more positives going on than negatives, and that means today is a good day!!!!

Posted in Uncategorized | Tagged Bentyl, Degenerative Disk Disease, diet, difficulty walking, drug interaction, eBay, elimination difficulties, GERD, insomnia, muscle spasms, Orthopedist, pain, Quality of Life, walking shoes | Leave a reply

Insurance Has APPROVED My Dental Appliance!!

Day by Day with a Movement Disorder Posted on November 10, 2007 by DBNovember 10, 2007 8

I knew I was having a good day yesterday! When we came home from our Date Day, I had a lovely letter waiting for me, stating that the TAP Dental Appliance has been approved by my insurance for the treatment of my Sleep Apnea. I immediately called them to find out how to get my money back, as I had to pay my dentist for it up front. They are sending me the forms to take care of this. Whooopiieeeee!! I had anticipated some trouble with them agreeing that it was eligible, so that’s something else I can cross off my list.

My neck is still very uncomfortable, but I made myself work on the compost heap this morning. I can’t afford to give in to it, or I’ll find myself able to do less and less.

I actually slept until my first medicine alarm went off this morning at 5:00AM! EIGHT HOURS OF SLEEP!!! That’s the first time that has happened. I’m still waking up quite a bit in the night, but unlike before, I am able to drift back to sleep, even after I’ve been up to use the bathroom.

We ate at on of our favorite Mexican restaurants yesterday for lunch, but I was a good girl and got the Huevos Rancheros, which is nothing but sunny side up eggs with sauce on top. I scrape the sauce over to the side, eat the Spanish rice and the eggs, and just taste the refried beans. I did get a side order of the guacamole, which I really enjoy and finished off a bunch of the tostados they bring. I did NOT have the woozy feeling after lunch. So I’m pretty sure it’s not protein that sets it off. It may be fat, though. I’ve basically been avoiding eating beef or pork for lunch. Most of the week we had the fake crab meat in a spinach and cabbage salad, and that does not cause the funny feeling, either.

I’m still having real problems with tremors and walking is not as easy, as I have this constant feeling of walking on Jello, because my legs are shaking the whole time I am walking. I’m using the cane just about any time we leave the house now, except for church. I’m trying to hold off using it there, because I get asked too many questions about how I’m doing. It makes me self conscious. I have started taking a lap robe to church, though, as I have come to realize that I have the hard tremors in church because I’m cold! I’ll be making an appointment with the Neurologist next week, now that I’ve been on the new meds for awhile and the apnea and tummy are well under control.

Our older daughter and her hubby are going to do the honors for Thanksgiving Dinner this year. They both love to cook, which I never did, and this is their first holiday in their new home. I’ve always been the one to have the Thanksgiving meal, but I’m very happy to pass this tradition along to her, and just help out with the expense. Hopefully our younger daughter and her family will be able to come, too. With me not having to do anything for dinner, I can really enjoy the day.

So, things continue to come to good conclusions, and I remain optimistic. May we all have a great day today!!

Posted in Uncategorized | Tagged balance, cane, Church family, dental appliance, diet, difficulty walking, exercise, gait, insomnia, insurance, muscle spasms, Orthopedist, Parkinson's, Quality of Life, Sleep Apnea, TAP, tremors | 8 Replies

Some Things Better, Progress with Others

Day by Day with a Movement Disorder Posted on October 27, 2007 by DBOctober 27, 2007 2

I’ve been busy the last few days trying to get used to the TAP and regulating my meds and diet to try to deal with the colon problems I’ve had for well over a year now. The TAP dental appliance is doing as well as I would expect. I slept about 7 hours last night, which is a huge improvement for me. I am still waking up a couple of times in the night to go to the bathroom, though, so it’s not yet a completely restful sleep. It’s time for me to make an appointment for a new Sleep Study, to see if the device is handling my Apnea appropriately. That will be the determining factor on whether I can get my insurance to pay for the TAP or not, and whether it’s worth using.

I am pleased to see that there is a way to use the TAP device as the anchoring mechanism for a CPAP mask, if it becomes necessary to go back on that. A nasal pillow delivery system can be attached directly to the dental appliance, so there would be no straps or mask all over my face. That’s encouraging, as it means I can look forward to either getting by with just the TAP, or the TAP plus CPAP – but NO MASK!!! So, I’m very optimistic about the coming Sleep Study.

As for the elimination situation, I am somewhat improved, although certainly not where I would like to be. I’m still belching and having gas problems, but not having as much trouble actually going to the bathroom as I was. So, the Acidophilus, the Bentyl prescription, and an extra Metamucil capsule a day seem to be the right plan of attack for that problem.

DH and I have been searching for some practical ways for me to keep track of all my pills, the dosing times, and a way to effectively keep me on schedule. I seem to have some kind of Freudian aversion to remembering to take my pills. I hate having to take so much medicine, and I think it’s causing some kind of passive aggressive reaction that I’m going to have to overcome. We’ve taken some positive steps to get over this hump. We bought two Plano tool/fishing tackle boxes, each with 4 storage boxes in it. That gives me enough boxes for 8 days, so I can make up meds once a week and have a spare. Right now I am taking medicine at 12 different times a day, so I put a numbered sticker in the bottom of each little compartment, with the dosing time on it. I can take the small box for one day with me wherever I go fairly easily. I even found that I could use my Bible cover to “hide” my pills on Sunday. I just carried my Bible loose and put the pill box in where the Bible would have been. I have to take a dose between Sunday School and Church, so this worked nicely.

Getting me on a dependable schedule was the next problem to handle. I searched for days all over the Internet, looking for pill reminder systems that I thought would work for me. Most would not give enough alarms to suit my needs, or any PWP’s needs, for that matter. PWP tend to take our meds closer and closer to each other as the disease progresses, so it’s not unusual for a Parkie to be taking something every hour during the day, and even getting up in the night to take something. Also, some of the more promising systems only allowed you to set pill reminders from say 8:00AM to midnight, and my first pill is at 5:00 AM.

So, I ended up buying a Timex Ironman Data Link watch, which can be connected to the computer via USB. It’s like having a PDA on your wrist. It came yesterday, but I have been studying everything I could find about it while I waited for it to come, and I had my pill schedule all ready to send to the watch. It worked like a charm. It beeps and the face lights up and flashes for several seconds, and the names of the pills I need to take scroll across the watch face. If I don’t push a button on the watch, I get another reminder in 5 minutes. Since I’ll be wearing it, I’m much more likely to heed the reminder. I also have the reminders set up on Outlook, since the computer is on all day long, anyway.

The watch needs to be quite large, as you might expect, so it’s the size of a man’s sports watch. I don’t mind that, if it keeps me from forgetting a pill, as I have been prone to do. For now, it’s in my pocket, because I’m going to have some links taken out of the band. There’s a lot to learn about this watch, but the main thing for me was the Alarm mode, as it allows up to 200 alarms a day! And that was super easy to get up and running.

My tremors still remain, not as bad as they were when I went to the ER, but still enough to make me feel like I’m trying to walk on Jello, and it gets worse as I get tired later on in the day. I use the walls and the furniture here in the house to steady myself, and I have managed to do without my cane at church, by the hardest. But anywhere else we go, like our Date Day, or to go out to eat, I’m using the cane. The hand tremors are also more prominent, and don’t seem to ever go away completely, but I can handle a fork and spoon OK, and type, so I can live with that.

My biggest problem has been the odd about to pass out feeling I’ve been getting after lunch and supper, but not breakfast. We’ve checked my blood pressure during a couple of these attacks, and it’s always low, like 98/58 low. I can’t do much but sit very still and wait for the feeling to pass. I have found that eating something sweet makes me feel better, but that may just be because it’s a comfort food for me. Or, it may means that this feeling is from a low blood sugar situation, rather than a low blood pressure one.

We may have narrowed it down to being an interaction between the Sinemet and the protein in my meals. Yesterday, just as a test, I had a vegetable lunch without any meat, and I did not have the weird feeling later on. So, I’ll try that again for a few days, and see what happens.

Dear sweet hubby took over the compost making task for me for the last couple of weeks, but I did it all by myself this morning. I’m very tired, but feeling good that I was able to accomplish it. I’m also sweeping off parts of the driveway almost daily now, and the deck and patio underneath every once in awhile. That gives my arms and shoulders a good workout, and it’s good for my balance, too. I’m also using the trekking poles the whole time at the track now, where I usually do 3 laps, and then the leg exercises and my Tai Chi. My balance is still way off, so the Tai Chi looks pretty ragged, but I’m doing it anyway. After all, nobody but me knows just how pitiful my form is, right? 😉

So, I see progress with several areas of concern, but disappointment that I am in nowhere near as good a shape as I was before I had the Celestone shot that sent me to the ER.

I continue to try my best to live each day with a positive outlook, and I think the Bentyl has helped with the depression I was dealing with.

Posted in Uncategorized | Tagged antidepressant, balance, Bentyl, blood pressure, cane, dental appliance, diet, difficulty walking, exercise, gas, IBS, insomnia, Metamucil, Sinemet, Sleep Apnea, Sleep Study, Tai Chi, walking poles | 2 Replies

Is My Tummy Ever Going to Be Normal Again?

Day by Day with a Movement Disorder Posted on December 6, 2006 by DBDecember 6, 2006  

I started this blog to keep track of everything that was going on with what turned out to be a diagnosis of Peripheral Neuropathy and Parkinson’s Disease. Once the PD diagnosis was made, the Neurologist seemed to basically ignore the PN diagnosis. Since I can’t really tell that I’m not feeling things as well on my right side, that’s OK with me, as long as I can walk normally. And I can say, that as long as I’m faithful to take my PD meds, I am walking normally enough to appear to be symptom free to the uneducated eye.

So, what’s the problem? It has been, and continues to be, my digestive system. As I sit here writing this, my stomach feels like I have some kind of heavy weight in it, and there’s the feeling of a lump all the way up to my throat. I’ve had good days, usually several in a row, but I’ve had more bad days than good since I started taking the PD meds. Since I do have good days, I keep trying to find a pattern, something I’m doing right, or wrong, that will give me some clues as to how to avoid this bloated uncomfortable feeling. But I can’t find a pattern at all. It’s very frustrating to go to the doctor, and they start asking all of their neat little questions, and you can’t give them any neat little answers!

OK, I’ve whined long enough. This is turning into a major problem for me, as I’m losing weight rather rapidly, simply because I don’t feel like eating. I have a Gastroenterologist appointment on the 20th, and hopefully by then I’ll have something to tell him besides it feels like a weight and a lump!

Posted in Uncategorized | Tagged bloating, diet, gas, Gastroenterologist, GERD, nausea, nutrition, pain, Parkinson's, stomach, weight loss | Leave a reply

One More Thing I Can’t Eat Any More :(

Day by Day with a Movement Disorder Posted on December 4, 2006 by DBDecember 4, 2006  

I really like well made pork and beans, and we had some good ones for Thanksgiving. I wasn’t able to enjoy them on Thanksgiving Day, because my stomach was really giving me a hard time, with lots of cramping and pain. But I’ve tried several times since, while eating the left-overs, to take just a small amount of the beans, after being careful to take a BEANO tablet first. It didn’t do any good. Almost as soon as the beans hit my stomach, the cramping would start. Since I enjoy eating them so much, I’ve tried it again today, but the results were the same. So, that’s one more thing I can’t eat.

It wouldn’t surprise you that I’m losing weight, would it? After all, most of the things I really enjoy eating are now off limits, not because somebody just told me to quit eating them (which would never work), but because they make me sick. That’s a pretty good incentive to do without some of my all time favorites, like milkshakes and chocolate … sigh. These were always my comfort foods, and now I can’t eat them at all. Bummer.

Of course, I really do need to lose the weight, so I shouldn’t be upset. But I really would love to have a thick chocolate shake about now. I can dream about one, anyway, right?

If we lived near Birmingham, I’d try some Soy chocolate ice cream, but we don’t, so that’s not an option. The next time we go to the doctor I’m definitely getting some, though. That’s a promise to me!

Posted in Uncategorized | Tagged Beano, diet, gas, nausea, pain, stomach, weight loss | Leave a reply

Continuing to Feel Good

Day by Day with a Movement Disorder Posted on November 20, 2006 by DBNovember 20, 2006 2

I felt better for a Sunday than I have in some time. All the exercise is beginning to pay off, I think. Usually, by the time I’ve cleaned up after Daddy and fixed his cooked Sunday morning breakfast, I’m already tired. Then the long sit through Sunday School and Church just leaves me drained for the day. That didn’t happen yesterday. I had plenty of energy. My body still cramped some in church, but not as bad as usual. I’ve stopped carrying the cane to church, too, so I’m feeling much more normal. Everyone’s still good to ask about me and let me know that they are praying for me, which I really appreciate.

I didn’t do so good a job of staying off the computer yesterday, even though I really did mean to. This is going to be a hard habit to change, and the difficulty of it just convinces me that it has reached the compulsive point. I’ve gone through all my usual daily computer tasks already this morning, and I’ve taken a set of pictures for an eBay listing already, so at least I’m being a little more efficient.

We’re taking Daddy to the Podiatrist today, so that will get me away from the computer for awhile. I’m going to see the Podiatrist, too, this time. I made the appointment several months ago, thinking I would keep it if the diagnosis was Parkinson’s and cancel it if it weren’t. What with the Peripheral Neuropathy, and some very deformed toenails already, it just seemed like a good idea to touch base with him. Daddy sees him every three months, as he’s a diabetic, but I don’t expect to see him but maybe once a year, unless he tells me otherwise.

I’m noticing a gradual weight loss, which suits me just fine. I’ve just about cut out all sweets, and my portion sizes are much smaller than they used to be. I really don’t feel like eating very much at one time any more. I’ve cut out the in between snacks, too, for the most part. And the meal at night is usually very small – sometimes only a banana. I just don’t get hungry at night any more. We eat our big meal at lunch now, and my dear sweet hubby, who does the cooking, makes sure it’s a very nutritious meal. I’m overweight, anyway, which puts extra strain on my legs and balance, so I hope to continue to lose weight gradually for some time.

Posted in Uncategorized | Tagged computer addict, diet, exercise, nutrition, OCD, Podiatrist, prayer, Sunday, weight loss | 2 Replies

Information on Swallowing Problems with PD

Day by Day with a Movement Disorder Posted on November 8, 2006 by DBMay 7, 2016 4

One of my dear blogging friends, Marion, asked me in her comment today for help planning a menu for an Advanced Parkinson’s guest she was expecting, who has trouble swallowing. After Googling on the subject, this seems to be the best general information I could find.

This is an excerpt from a very well written pdf article titled, Parkinson’s and Swallowing.

It is important that you continue eating your regular food until you are no longer able to do so safely. A regular diet with a wide range of tastes and textures is important to keep all of your muscles working, and encourage proper nutrition and hydration. Only if you begin experiencing significant difficulty, you may need to adapt your diet. While each individual will have different problems and therefore different solutions, the following suggestions may help.

SUGGESTED FOOD

• Food that is soft and moist, with a good flavour and smell, tends to be easier to swallow: custards, jelly, pureed fruit, sauces, spices and herbs.

• Avoid foods which are hard, dry, crumbly or stringy.

• Avoid mixed consistencies (e.g. solid plus liquid).

• Be careful with foods which stick to the roof of the mouth or get caught around the mouth: dry mashed potatoes, tomato with skin on, biscuits, bran flakes, hard-boiled eggs.

• Thicker fluids (e.g. nectars, milk shakes) may be easier to control and swallow than thin clear liquids, as they move more slowly.

• Keep food presentation appetising: flavour, smell and appearance of food.

• Relax and enjoy your food. It is good to have a break between mouthfuls and take sips of water during the meal. This will not only help you relax, but also allow you to clear your throat and mouth. You may need to swallow twice to clear each mouthful.

• Eat smaller portions more frequently, especially if time for meals is limited.

POSSIBLE PROBLEM FOODS

• mixed textures, like liquid with bits in (e.g. minestrone soup or watery mince);

• flakey biscuits;

• hard toast or nuts, chocolate, grains, seeds;

• stringy, fibrous vegetables


FOODS THAT MAY BE EASIER TO SWALLOW

• milk

• mousse, custard, yogurt, ice cream

• souffle, omelette

• casseroles

• soup (Creamed would be my suggestion, based on other articles I’ve read.)

• fruit juice, pureed fruit

• pancakes (with syrup etc.)

• soft boiled rice

• well cooked vegetables

• banana.

Hopefully this information will be of some help to Marion as she plans her menu, and possibly to others as well.

Posted in Uncategorized | Tagged diet, eating out, nutrition, Parkinson's, Quality of Life, swallowing | 4 Replies

Nutrition Suggestions for GERD plus Sinemet

Day by Day with a Movement Disorder Posted on September 25, 2006 by DBApril 17, 2021 2

After spending this weekend nauseated, it is obvious that I’m going to have to be very careful not only with when I take my medicine, but also with what I eat. After doing a lot of research on my own, and getting a general idea of what I need to have, I was at a loss as to how I was going to decide on a diet, taking my GERD into account.

So I wrote to Jackie, a fellow BLOG VILLAGER at The Vegan Diet, who was kind enough to put together some information for me. She’s done such a wonderful job of pulling together just what I needed that I thought it might help someone else, so here are her suggestions.

I see with GERD you must steer away from :

* fatty or fried foods * peppermint and spearmint * whole milk
* oils *onions * chocolate *high sugar content * creamed foods or soups
* most fast foods * citrus fruits and juices (grapefruit, orange, pineapple, tomato)
* coffee (regular and decaffeinated) * caffeinated soft drinks * tea
* other caffeinated beverages *Spicy or acidic foods

You can have :

apples, berries, melons, bananas, peaches, pears
chicken (no skin), fish, turkey (no skin)
fat-free milk and yogurt
milk free breads
a miniscule amount of fat or butter

Basically my advice is lots of small meals a day, not three meals a day. I eat 5 meals a day, like many people do now for many medical conditions and to keep weight average (not under or overweight), as it keeps my IBS and my sugar levels on track. A few ideas below, not totally vegan, plus useful links at the bottom.

Breakfast

Fruit is good. Papaya is the best I find when I am acidic. Herbal tea (not mint)

Mid morning

Fruit Apples, melon, bananas and nuts like almonds and walnuts (most nutritious).
or Bean dip (chick peas or beans blended with a tiny amount of oil just to make it cream cheese consistency and a fresh herb like cilantro) on a slice of white or brown bread (not seed bread or wholewheat)

Lunch

Tofu dip (no oil with it) with raw vegetables like carrot sticks or
Veggie Soup with tofu cubes

or this Fish Dish recommended by a GERD sufferer:

This recipe is for one serving. Increase the ingredients for additional servings as needed.

One 4oz filet of white fish (orange roughly, sole, turbot, flounder, etc)
One med. Potato. Steamed green vegetable such as broccoli, spinach, peas or asparagus
Parsley or chives for garnish. ¼ tbsp unsalted butter, olive oil or Pam

We will start with the potatoes, because they take the longest to cook, and they tend to retain their heat the longest. The fish and vegetable take only minutes to cook.
Peel and cube potato. Place in cold water to cover. Bring to the boil, and then simmer until fork tender. Drain, leaving just enough cooking liquid for mashing or whipping. You may also use the vegetable broth (recipe below) instead. Add salt to taste. Hold in a warm place. Season fish with salt and pepper to taste. Place non-stick sauté pan over med high heat. Add butter, oil or spray with Pam. When not quite smoking, add fish. Cook two minutes, turn and cook other side for two minutes, or until the filet is light brown and cooked through. If the filet is very thin, one minute on each side may be enough. (You can broil or bake the fish if desired). Serve fish on top of mashed potatoes, surrounded by the steamed vegetables. Garnish with chopped parsley or chives.

or Savory Lentils with Texmati Brown Rice

1/2 lb of organic green lentils (2 ½ cups), rinsed 4 cups water or stock
1/2 onion, chopped 1 cloves of garlic, chopped 2 carrots, sliced
2 stalks celery, chopped 1 bay leaf 2 sprigs of thyme, or ½ tsp dried
Organic Texmati brown rice (follow instructions on package)

To a large pot bring water and lentils to a boil. Add other ingredients. Reduce to the simmer, partially covered. Cook until tender (about 20 to 30 minutes), stirring occasionally and adding more liquid as needed.. Remove the bay leaf and thyme sprigs. Season with salt and freshly ground black pepper to taste. Serve over organic Texmati brown rice. Garnish with chopped parsley. Serve with a light green salad, dressed with the lemon chive dressing above.

Mid Afternoon

Herbal tea (not mint) or glass of strawberry soy milk or flavored fat-free yogurt

Early evening (best for supper)

Grilled or dry stirfried turkey or chicken without skin and steamed or stir fried veggies and mashed potatoes/baked potato or pasta

or Broiled Burgers with Mushrooms and Rice

1 lb lean (10% or less fat) ground beef
1/4 cup seasoned bread crumbs
1/2 tsp dried rosemary (crushed)
2 tsp dried parsley, divided
1 egg white
Nonstick vegetable cooking spray
1 tbsp olive oil
2 cups mushrooms
1 cup fat free skim milk
1 tbsp flour
1 1/2 tbsp Worcestershire sauce
1/4 tsp salt
1 cup long-grain brown rice, cooked according to directions

In a bowl combine ground beef, bread crumbs, rosemary, 1 tsp parsley, and egg white.
Mix well and make into four 3/4″ thick patties. Spray a broiler pan rack with nonstick vegetable cooking spray. Place patties on rack and broil 3 to 4 inches from heat for 5 to 6 minutes on each side or until desired doneness. Put olive oil and mushrooms in a skillet sprayed with nonstick vegetable cooking spray over medium-high heat. Cook 3 to 4 minutes until mushrooms are soft. Combine milk and flour together in a bowl. Add mixture to skillet. Add Worcestershire sauce, the remaining 1 tsp parsley, and salt. Stirring constantly with wire whisk, cook sauce 3 to 4 minutes until thickened. Serve mushroom sauce over broiled burgers with hot cooked brown rice. Makes 4 servings.

3 hours before bed

Another snack like a banana or a cup of clear soup

***************************
Gerd friendly recipes – Vegan and meat eaters (index in right column)

Fat Free Vegan and Vegetarian Recipes

Non Vegetarian Dairy-Free (lots of ideas and substitutes)

VegWeb Fat-Free Recipes plus tons of other recipes that should be suitable

Free Vegan Cookbooks (fabulous ideas) to download

Physicians Committee for Responsible Medicine:
Parkinson articles

I had asked Jackie to help me find foods that would be suitable for a GERD diet and take into account the fact that Sinemet cannot be taken with large amounts of protein. I’d say she went out of her way to be helpful, wouldn’t you? But I shouldn’t be surprised. Every post she has on her blogs is just this thorough.

I can’t thank her enough for all this information, but I can ask you to visit her blog, so please stop by


The Vegan Diet

Posted in Uncategorized | Tagged diet, GERD, nausea, nutrition, Parkinson's, Sinemet | 2 Replies

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