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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: Friday Date Day

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Wonderful Date Day Today!

Day by Day with a Movement Disorder Posted on September 15, 2006 by DBSeptember 15, 2006 2

DH and I had a wonderful time today traveling all over the backwoods, through some of the small mining towns north of Birmingham, going to several Estate Sales and a few Yard Sales, too. We got lost a few times, but we still had a lot of fun, and I think we made some good buys. We finally ended up getting lost in the general vicinity of one of our favorite Thrift Stores, so we decided to quit going around in circles and went to the store, instead. We had very good luck there, as we usually do. One item will cover a large part of our day’s expenses, so the rest of our day’s purchases will be all profit when they sell.

I really do need to find one of those adjustable canes with the prongs on the end. When you go to sales like this the houses tend to be crowded with stuff and people, and sometimes the walker is really in the way. I’m glad I have it, though, as I wouldn’t be able to enjoy so much walking without it.

So far people have been very kind and helpful. I haven’t yet hit anyone being rude, but at least I’m prepared for it, thanks to several posts and comments on Wheelie Catholic. Of course people in the South generally are more polite than other parts of the country, so I may not run into one of the rude jerks that others have discussed. I hope not, because I’m not sure how DH would handle it.

Posted in Uncategorized | Tagged Friday Date Day, walker | 2 Replies

Friday Date Day Plus Walker – 1st Time

Day by Day with a Movement Disorder Posted on September 1, 2006 by DBSeptember 1, 2006  

DH and I had a fairly normal Date Day today. The only thing that kept it from being completely normal was that nobody was having any Estate Sales today within a decent driving distance of our house.

I’ve worked out a pretty good system. I use the online version of our newspaper to find the Garage Sales section, and I search for the Friday sales and the Estate sales. With that tab of FireFox open, I go to our AAA membership and pull up the travel map tab. All I have to do is copy and paste the addresses of the sales into the AAA page, and their program will turn it into a trip map. Once I get a look at the map, I can tell how to rearrange the stops to make it the most efficient gas wise. With a printout of the directions and maps to go by, it takes all the stress out of finding the sales.

We try to pick a different part of town each week, and we know where the good thrift stores are, too, so we’ll always find something we can sell for a profit, that will pay for our mileage and dinner out, at least. We’ve been doing this long enough that we pretty well know which parts of town are likely to have steep driveways, so we avoid those for now.

We’ve been selling vintage collectibles and plush animals and soft dolls on eBay and from our own website now for several years, and it’s been a lot of fun. (In case you’re curious about what we have available right now, you’ll find our shop banners in the right hand column.) I haven’t put any new items up for sale for several months now, as I’ve been so sick, but I’m hoping to get busy this next week.

I’m very glad to find that having trouble walking isn’t going to spoil our Date Day fun. Using the walker worked quite well today. My biggest problem seems to be when I stop and stand still for awhile. If my leg condition turns out to be a permanent situation (I’m still being evaluated) then I’m definitely going to want one of those that has the built in seat. From what I can tell from looking on the Internet, I think I want push brakes, too. If any reader has any experience with different types of walkers, I’d appreciate your suggestions.

My DH fussed at me for apologizing to him for his having to get the walker in and out of the car so many times for the different yard sales. I can’t help it, though. It makes me feel bad that I’m having to inconvenience him. I know he loves me and would do what ever I need for him to do, just as I would do for him. I know that. Yes, I do know that. Saying it just doesn’t seem to help the way I feel, though……. Something else to get used to.

Posted in Uncategorized | Tagged Friday Date Day, walker | Leave a reply

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