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My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: gastroparesis

Irritated Eyes and Digestive System – UGH

Day by Day with a Movement Disorder Posted on February 6, 2014 by DBMay 8, 2016  

I’ve been dealing with eye issues for the last few weeks. I figured it was just allergies, as I’ve had a runny nose, too, but I obviously didn’t have a cold. Lots of itchiness and feeling like I had an eyelash in my eye, and it was progressively getting worse. I reached a point where being in sunlight or in bright lights was very painful.

So off to the eye doctor I went, reluctantly, but I really didn’t have a choice. Turns out it was a bacterial infection, and he put me on antibiotic and steroid eye drops.

I was still very uncomfortable, even after I finished the bottle, so we went back to the doctor. I have a history of dry eye syndrome, so this time he plugged the lower tear duct holes with lachrymal implants. The purpose of these is to keep the tears from evaporating off the eyeball so quickly.

Thanks to my Mitochondrial Myopathy, we both agreed that the implants were a better choice than Restasis, the usual drug prescribed for this issue. The fewer toxins I put in my body the better. He had tried the implants some years ago, but they came out. At least they got me through the allergy season that had me irritated at that time. I’m hoping for the same good outcome this time.

I’ve also had constipation problems ever since we were stuck in a hotel for two days after a harrowing two plus hour drive to get out of the unexpectedly heavy snow storm that hit the South last week. I shouldn’t be surprised, considering both of our stress levels had to have gone through the roof while we crept along that three miles to the hotel.

We weren’t able to eat what we normally would either, which I’m sure just added to the problem. But the reason I bother to mention this is the new LCHF diet I’m on makes me wonder if the constipation was more due to stress or to the drastic change in what I eat, particularly the huge increase in my fat intake. Time will tell whether it’s diet related, or just a blip caused by such an unusual week.

I know how to deal with the constipation, as that has been a recurring problem for many years. One of the ways my Mitochondrial Myopathy presents itself is a slow digestive process, called gastroparesis. But not being able to read for any length of time or work on the computer is bothering me greatly.

I pray that the implants stay in long enough to improve the quality of my tear production and heal my irritated eyeballs. And I hope the constipation problem was temporary and not caused by the LCHF lifestyle I’m trying very hard to live.

Posted in MITO | Tagged allergies, constipation, gastroparesis, high fat, lachrymal implants, LCHF, low carbohydrates, Mitochondrial Myopathy, Restasis | Leave a reply

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