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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

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Busy Busy Day

Day by Day with a Movement Disorder Posted on October 6, 2006 by DBOctober 6, 2006  

I walked to Daddy’s this morning …. the first time I’ve done that in about six months or so. He lives about a block or two away, I guess, but we don’t have blocks. DH came and got me, so I wouldn’t tire out too much.

We had a full day today, making our usual round of the Estate Sales, looking for the really good bargains. We did find a few goodies, too, and I got a lot of walking in. By lunch time I was pretty well worn out, but it was fun. After lunch we went to the thrift store and did some more bargain hunting and then headed to the other side of town for my Gastroenterologist appointment.

Dr. B doesn’t seem to think that the acid reflux I’m experiencing is due to the Parkinson’s medicines, so he’s scheduled an endoscopy and an ultrasound for next week, and I gave more blood today for a liver function test.

As caregivers, we always kept a spiral notebook log of everything that happened concerning our loved one, such as when we gave medicine, any behavior changes, any digestion problems, etc., and we always took it to the doctors. So today, for the first time, we used the new notebook we bought yesterday for the start of my log, writing down Dr. B’s directions for me to take my Protonix twice a day and not drink any liquids with my meals. We’ll continue to note anything out of the ordinary in the notebook from now on.

Posted in Uncategorized | Tagged appointments, endoscopy, Friday Date Day, Gastroenterologist, GERD, log, ultrasound | Leave a reply

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