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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: Metformin

Great News about my Diabetes!!

Day by Day with a Movement Disorder Posted on December 18, 2010 by DBOctober 22, 2019 2

My doctor is very proud of me for having an A1C of 5.5 two times in a row. That means for the last 8 months I’ve had a better sugar level than most people without diabetes! He actually said I was no longer Diabetic, and he halved my Metformin dosage. To say the least I’ve been celebrating this week, and with Christmas right around the corner I’m sure I’ll indulge more than I did last Christmas! After that, I’ll have to go back to eating more properly and checking my blood glucose levels, but for right now…we’re just celebrating.

I could never have lost and kept off the 60+ pounds over the last almost 2 years now if it hadn’t been for my dear sweet hubby, who does the grocery shopping and cooking. He’s read everything he could get his hands on ever since I was originally diagnosed with Parkinson’s way back in 2005 to be sure I eat the very best possible diet of high antioxidant Super Foods, as have I. And he checked Nutrition labels on every processed food he bought for the last 2+ years for sugar and carbs. I was determined to beat the Diabetes, if at all possible, but I wouldn’t have done it without his considerable help. And we wanted to alleviate the Movement Disorder symptoms as much as possible, too.

So here’s a great big {{{{HUG}}} to the love of my life!

As for the jerks of my current diagnosis – Essential Myoclonus, the news isn’t as good, but maybe I’m doing better than I was. The Depakote plus Primidone combination seems to work a little better than the Neurontin plus Primidone did. It just doesn’t take much to break through and send my shoulder into a jerking fit. The least bit of stress, and it can go on for what seems like hours. Like at the dentist the other day. I jerked in the chair the whole time he did a filling. I like my dentist, but I have childhood memories that have left me dealing with high stress every time I go. I’m better than I used to be, but all the jerking reminds me of how deep seated this fear is.

So hubby and I are celebrating our 50th Christmas together (if you count the years we dated or were engaged), with our family in good health. We are very thankful to God for seeing us through some rough times, but I have faith that times are going to get better.

I pray you and your family will know the Spirit of Christ during this Christmas season.

Posted in Nutrition | Tagged Christmas, Depakote, diabetes, diet, family, God, jerks, Metformin, Movement Disorder, nutrition, Primidone, Super Foods | 2 Replies

Doc Says I’m Doing Great … but ………

Day by Day with a Movement Disorder Posted on July 5, 2009 by DBMay 21, 2016 9

I couldn’t stand it any more and made an appointment to see my Diabetes doctor earlier than scheduled. I’ve been so frustrated by so many test results that were more than he had told me to aim for that I felt like something surely could be done to improve things.

So, we went to the doctor Thursday, and he bragged on my 1200 calorie diet and thought I was “doing great” with my glucose numbers. (THAT certainly surprised us both!) But … in the very next breath he DOUBLED my dose of Glucophage! He said I could cut back on the blood testing to 3 times a day, too. Since the test strips are so expensive this is a big help. Medicare pays for 50 strips a month, and the rest has to be paid out of pocket, since my insurance doesn’t cover the test strips.

So far so good on all the testing I’ve done since doubling the dose of medicine, so I’m feeling optimistic that I will lose the weight and eventually leave this diabetes diagnosis behind. Right now I’ve lost right at 20 pounds!! Considering how ravenously hungry I was all the time before being diagnosed, when my glucose was out of control, this is great news!!!

Posted in Type II Diabetes | Tagged blood glucose, diabetes, diagnosis, diet, FitDay, Glucophage, Metformin, weight loss | 9 Replies

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