Everyone on the PatientsLikeMe forum is grieving along with one of our dear Parkie friends, btrflynana, who has just had her diagnosis changed to MSA.
Multiple System Atrophy is the big gun version of Parkinson’s like disorders, and does not have a good prognosis at all. Most people only live about 9 or 10 years after diagnosis, and much of that time is in severely compromised health. I have been so hoping that she would have good news, as I did when my diagnosis was changed, but that is not to be.
She has a wonderfully sweet nature, and wrote a sad and yet determined post about the new diagnosis this morning. All her family are there to help her through this horrible grieving time, and her online friends are hurting for her and grieving for her, too.
My heart goes out to her and to her family.
“Have mercy upon me, O LORD; for I am weak O LORD. Heal me; for my bones are vexed.”
Psalms 6:2 KJV
Amen and Amen.