I have been a member of PatientsLikeMe for some time now, and am convinced that it is one of the best sites for people with all kinds of neurological diseases to join, from those with ALS, MS, to various forms of Parkinson’s Disease. They have split off a new forum for those Parkinson’s members who have been diagnosed with MSA. Multiple System Atrophy is a particularly aggressive form of the Parkinson’s like diseases, with some symptoms that Parkies don’t usually have.
I wrote recently about one of my PLM friends whose diagnosis was recently changed to MSA, and she is blogging about her experience dealing with this devastating change of direction. She’s doing a great job of letting the reader see the physical and emotional trials she is experiencing.
So, I’m calling for all those who have been diagnosed with MSA to take a look at PLM and at least consider joining and participating. And while you’re at it, go give B’Nana an encouraging word. I’m sure she can use it!!