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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: recovery

IMPROVING!

Day by Day with a Movement Disorder Posted on September 16, 2017 by DBDecember 2, 2017  

Improving a LOT

I’m really improving, and it’s only been six weeks since my skull base surgery! I saw my own ENT this week to have more debriding done to remove crusting in the nose and sinuses. This was at the direction of my surgeon. As usual, it did not feel good, even though he used a numbing material in my nostrils. And I took a muscle relaxer ahead of time, attempting to keep my neck from such painful spasms afterwards. I did have neck pain, but it was nothing like the last time at the surgeon’s office.  That’s when he removed the splints in the frontal sinuses that he completely re-designed. (I now have one large cavity above my eyebrows, rather than two separate ones with bone in between.)

Energy Improving

I started a few weeks before surgery to increase how much I walked, and I also started a new program that is supposed to improve Mitochondrial energy. Hubby found the program, and we watched the free introductory videos. It appeared to be compatible with everything I had learned on my own about how the mitochondria work. We prayed about it and talked a lot about it. So we decided to take a leap of faith that this program would help me. And we bought the program. I was assured before purchasing that I could get a full refund if I decided my Mitochondrial Myopathy had not shown improvement with the lifestyle changes that were being recommended.

The Energy Blueprint

So I have now been studying and using for the last two months many of the Energy Blueprint* program strategies. It’s all explained by Ari Whitten in great detail in video modules, summary documents, podcasts, and information on a private Facebook group. And I can say without a doubt that I do NOT want my money back! I feel more energetic than I have in years. I am sure a lot of that is due to finally getting rid of the inflammation in my sinuses. But I credit the Energy Blueprint diet and lifestyle changes I have made to improving so fast after surgery. My sinuses are a long way from being healed, but everything is progressing as it should. And that certainly did NOT happen with my first sinus surgery two years ago, when the bone overgrowth first began.

It takes at least two months to watch everything in the Energy Blueprint program and even begin to implement the lifestyle changes. Ari does a good job of offering many strategies, understanding that no one would be able to do all of his suggestions at once. I’ll probably be making lifestyle changes for at least a couple of years to even come close to using every suggestion that is appropriate for me. He always spends time explaining which strategies are more suitable for people with Chronic Fatigue Syndrome and similar fatigue causing diseases. So I feel comfortable going slowly and building up very gradually.

Sunbathing??

For instance, Ari goes into great detail to explain the science of how the sun can increase the energy in the mitochondria. I had never before read that the sun had anything to do with my energy level. So this 74 year old lady started sunbathing at noon, no less, after years of wearing a long sleeve fleece jacket outside, even in the summer. At first I turned over like a rotisserie chicken, staying maybe two minutes total. Because I have cold intolerance, the 100 degree days at noon in the Alabama sun felt good to me.

But I was terrified that I would burn. As I have approached all the changes I’ve made with this program, I increased time to my sunbathing routine extremely gradually. Now I stay on each side for about ten minutes. For the first time I can ever remember – I am beginning to tan – I even have some tan lines! And yes, I can tell I am feeling more energetic, without having to get all my energy supply from food calories. I’m actually losing weight, even though I am eating a huge amount of fresh greens – much of it raw.

If I’ve said anything that peaks your interest in increasing your energy level and improving your health, you can learn more about The Energy Blueprint and about Ari Whitten HERE. There are several free videos you can watch to decide if this is something you would want to try. The course is not cheap, by any means, but I am convinced it was the right decision for me. If you decide to buy the course, I’d appreciate you using my affiliate link* for your purchase. But that’s definitely not necessary, if you don’t feel comfortable doing that.

Thankful!!

I am very thankful that we made the leap of faith to buy The Energy Blueprint program. I am thankful to God for leading us to this course. And I’m thankful to Him for how much I am improving at this point after surgery. I look forward to all the positive changes I will see over the next few years! And I’ll be writing from time to time about some of the Energy Blueprint lifestyle changes I’m making to improve my health and energy.

Posted in Quality of Life | Tagged energy, exercise, fatigue, mitochondria, Quality of Life, recovery, The Energy Blueprint | Leave a reply

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