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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: Stevia

I’m on the Full Triavil Dose Now

Day by Day with a Movement Disorder Posted on October 9, 2008 by DBMay 25, 2016 2

I’ve worked up to the full 3 times a day dose of Triavil, and my digestive system is definitely getting better. I am no longer eating something with every pill dose, but still with some that I think it would be wise. I also rearranged my pill taking times to make the schedule fit the Triavil better. I am supposed to take the last one late, but with food. That’s a big No No with GERD, so I have compromised by slowly moving my supper time to later in the evening. I still have to be through with all food and drink at least 2 hours before going to sleep, but it’s better than it was, anyway.

We have tried for some time now to use honey in my 8-10 cups of my anti-oxidant tea each day, trying to get away from the Splenda I was using. But, between the honey and eating something with each med dose, I’ve gained some weight again. So, after trying Xylitol and not finding it sweet at all, I am now using Stevia. So far I have not seen any bad effects from it, and cutting out the food with pills plus changing to zero calorie tea should help with the weight.

I’m still not getting as much exercise as I need to, although I continue to increase my activity level gradually, particularly with housework. And when I feel good enough I really enjoy having a clean house, so that is not the problem. I just wear out so quickly. I am a big fan of FlyLady, with her 15 minute chores!!!

I’m trying really hard to get ready for a yard sale to get some of the clutter out of here, plus we’re selling more toys than ever. That’s time consuming, but very emotionally rewarding, knowing that we are helping people find a lovie they are in some cases desperate to locate. The Lost Toys Search Service is our Ministry, as far as we’re concerned. But it’s the free side of our business, and the business pays for the time, gas, and items we sell. Each one helps the other, if that makes sense.

Every page of our listings and every email is sent with a scripture at the bottom that we picked as being appropriate for the audience we serve. And I add that signature with a tiny prayer that it is the right one for that person that day. God promises that his Word will not return void, and I claim that promise every day.

OK, that housework is beckoning, so while I still have some energy I need to go get something clean!!!

Posted in Medicines and Supplements | Tagged diet, elimination difficulties, exercise, exhaustion, GERD, Lost Toys Search Service, Stevia, stomach, Xylitol | 2 Replies

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