My DH saw me have a full body Parkinson’s tremor for the first time today. We’ve been around each other so little for the last few months that it took him by surprise. We’ve been taking turns during the day staying with Daddy, and I’ve been up here every night since Thanksgiving, so we really have been just passing each other. I had described one of these episodes to the Neurologist last time, and DH heard me, but seeing it is quite another thing. I think it scared him, and I’m sorry for that. For several minutes I look like I’m doing a Michael J. Fox imitation!!

It’s just that my Parkinson’s meds can’t keep up with the lack of sleep and the stress level I’m under right now. I don’t want to make changes in my PD meds, if I can help it, until this time with Daddy is over. I’d rather put up with these unexpected episodes on an occasional basis than to over medicate myself.

Daddy is very stable right now. He’s been asleep for several days now, totally unresponsive, except for some indication of pain when we are moving him to change the Depends. His urine output is low (it’s been a week since he’s had anything by mouth), so we aren’t changing him but twice a day now. The rest of the time, he’s sleeping peacefully. He’s getting morphine every 4 hours, plus a suppository twice a day with Atavan, Haldol, Benedryl, and Resperidol in it. Talk about Chill Pill!!

It’s such a blessing. If I could order up the way I would want to die, this would be it. I hope for his sake, and ours, that he continues this way to the end. DH’s Mama and Pop died fairly peacefully, but my Mama had a slow agonizing death. I’m praying that Daddy will continue the way he is now, until the end.