My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV
Day by Day with a Movement DisorderPosted on by DB2
We got the MRI results today, and everything in the brain scan looks normal!! That’s a big sigh of relief for both DH and me, as we’ve neither one said the words brain tumor out loud, but we’ve both been thinking it, and I’ve been Googling all sorts of possibilities.
I just made the follow up appointment, and that’s going to be another two week wait. That’s the most maddening part about this whole process – all the waiting. But I was determined to get the very best Neurologist we could possibly get on our insurance list, and that means a busy, busy doctor. It’s kind of like a restaurant with no cars out front at lunch time. You wonder what’s wrong with the place. You may have to wait a while at a good restuarant, but the wait is worth it.
We went to the Thrift Store today. It wore me out, but I sure did enjoy getting back to a normal routine and getting out of the house. We also visited for a little while with a lady from church who’s in the hospital, so I’ve had a full day today.
Yippee!! We both can breathe a little easier tonight!!
Day by Day with a Movement DisorderPosted on by DB
It’s so aggravating when my sleep schedule gets mixed up like this. I made myself stay in bed until 5 by the hardest, but I had the beginnings of a headache by then. I took 2 of the Tylenol arthritis pain meds, so my neck wouldn’t bother me all day and got up. Now I’m on the computer and yawning. Go figure.
Anyway, my legs and back were aching some last night from all the walking yesterday, but other than that, I’m OK. I did have a little trouble after the MRI yesterday. I was very wobbly after the test and had to ask for some steadying help to get back to the dressing room. DH knows me well and had a bag of M&M’s waiting for me, so I finished the Powerade and ate the peanuts and by then I was OK. We stopped and got one of the new Chick Filet’s chocolate shakes on the way home, too. He knows how to pamper me.
I did some research on brain tumors last night. I really haven’t allowed myself to think in that direction up until now, but getting the brain scan kind of pushed my thinking that way. Knowing I’ve been diagnosed with an angioma in the past, plus having the increased cerebral spinal fluid before, makes it much more of a possibility. We won’t know anything until maybe Friday, so I’ll just stay busy today.