Tag Archives: weight loss

Praying the Depakote Works

Day by Day with a Movement Disorder Posted on by 2

I heard from my Neurologist Wednesday, and he’s trying me on Depakote, instead of the Neurontin. So far I’m not groggy, but I’m still jerking. Hopefully not as bad as I was, though. Today should be the test of it, as it’s had time to get fully into my system now. So, we’ll just wait and see. It does have some possible side effects that aren’t good, such as weight gain, so I’ll have to start weighing regularly again. And watch what I eat, too, as I had been splurging a good bit lately. But I’m not counting Thanksgiving.

It’s strange how they attempt to medicate the symptoms of Essential Myoclonus. Both of my meds, Primidone and Depakote, as well as the Neurontin he took me off of, are anti-seizure meds. But the EEG showed that I’m not having seizures. They really don’t know how these meds work for some people, and for that matter they don’t know what causes EM, either.

We had an enjoyable Date Day yesterday, going to the Galleria and walking around, mostly to see the Christmas decorations. But it’s not like it used to be. There were only token, if any, decorations in the stores, and they didn’t have a Santa in the mall, either. It’s sad to see how “politically correct” everyone’s become, but they sure want our money! But the mall itself was pretty, and the walking was good for me. And we did get some shopping done, but not at the Galleria! Hurray for “dollar stores” (I can remember when they were 10 cent stores)!!

I’ll try to get some more housework done today, and I’m praying that the Depakote works. My walking is still very unsteady, but that may be from lack of enough exercise. Might as well get a clean house while I build a few muscles, eh?

I hope you all had a wonderful Thanksgiving, as we sure did. And I’m thankful that my Neurologist does have some choices for meds to try for me. I pray that he finds the one that stops the jerking.

Thanks be to God for all his unspeakable gifts! He has blessed us in so many ways, particularly that my wonderful hubby is here by my side to help me in any way I need. I don’t know what I would do without him. I love him so much!!

I pray that you keep Christ as the center of your Christmas giving and celebrating, and that you and your family enjoy His Blessings during this holy time of year.

I’m Still Losing Weight

Day by Day with a Movement Disorder Posted on by 2

Well, I have exceeded my goal weight loss by several pounds, and even though I’ve quit counting calories, I’m still losing weight. It’s just as slow a weight loss as it was all those months of trying, but losing it I am. And I’ve been allowing myself the occasional milkshake or pizza, as the mood strikes, too, without regard for calories or lactose intolerance or blood glucose numbers!

I guess I’ve just gotten so used to eating less that I am still “on a diet”, even though I’m not trying. Hmmm… anyone want a milkshake?

I’ve finished reading Dan’s book, I Will Go On, and I’m in the process of re-reading the chapters I found most inspirational to me. I can’t say that I “enjoyed” the first few chapters, but the bulk of the book more than made up for the opening explanation of the various types of Parkinson’s Plus disorders. I would still recommend it as great reading for anyone dealing with PD, or any Movement Disorder, either as the one with it, or as the care giver. I didn’t find the explanations that helpful, as I’ve already read all this many times before in my own Googling, but I would think that anyone new to PD Plus would find this layman’s explanation of all the variations of severe Movement Disorders to be very useful.

I can only be thankful to God that I have a relatively mild Movement Disorder.

Hubby and I have noticed some occasional tremors in my right hand that aren’t as jerky as my foot, shoulder, and face can get at times of stress. It’s nothing to be concerned about, but worth noting, in case it becomes more frequent. I will be able to look back here and see about when we first started seeing it.

When I was first diagnosed with Parkinson’s, we bought a notebook to log any and all symptoms, doctor’s visits, meds, etc. And I kept it up religiously until after the MDS had changed the diagnosis to Essential Myoclonus and had me on Primidone, which worked wonders for me. But I’ve long since quit writing much in it, depending more on keeping track here on my blog of our war on my Type II Diabetes diagnosis. I would recommend the journal method though, for anyone with a progressive disease, such as Parkinson’s. It’s great to be able to answer the doctor’s questions about onset of symptoms by turning back in a journal to the first entry for a given situation. And it’s much easier to keep track of the side effects of meds, etc., too.

There have been some family issues that have kept me somewhat depressed and definitely more tense of late. I don’t handle my emotions as well as I used to, either, so it’s affecting me more than I would like. It’s just something I need to work on. I know that with God’s help I can meet anything that comes my way.

I recently started trying to memorize scripture verses, both as a way of drawing closer to God and to also exercise my memory. I’m picking verses that I already know in a general way, and now I’m trying to learn where they are in the Bible and learn the exact King James version of them. That’s the version I grew up with, so it’s best for me to use. I know a lot of scriptures in a paraphrased sort of way, but, with few exceptions, I never learned their location in the Bible. I regret that I did not master these verses a long time ago. I can certainly tell that my brain is not as sharp as it used to be, but I’m glad to see that I am having some success.

So here I am at this moment in time, with some successes and other situations I continue to work on. Life is good.

I’ve Lost Weight – Now I’m Getting Asked If I’m Sick

Day by Day with a Movement Disorder Posted on by 10

This is a hoot. I’m in better health than I have been for years, but in the last few weeks my Hubby and I have been asked repeatedly if I’m sick. You’d think I had lost the weight quickly, but it took me over a year to lose the 50 pounds. And the questions are coming from people who see me every week.

I could understand it if I had just changed to clothes that fit me better, or if I had lost the weight in a hurry. But I redid my wardrobe totally several months ago.

Now, I am still losing a little bit of weight, so my new clothes are beginning to fit loosely. That may be the reason for the questions. But all those months I was wearing my old clothes that were way too big for me? Not a word from a soul.

So, now the question is, have I lost TOO much weight? I don’t think so. I still weigh about 10 pounds more than I did when I was 21, when we got married. And there’s no way I could possibly fit in my wedding dress now.

I think it’s because I look older now that I’m thinner. I’d rather I didn’t look older, but I’ll take looking older over feeling worse any day.

It’s really quite ironic. When I was so sick, but heavier, no one but family asked about my health. Now I’m thinner, and much healthier, and they’re concerned about me. Go figure. LOL!

Continuing to Feel Better – Had a Wonderful Christmas!

Day by Day with a Movement Disorder Posted on by 2

I think my stomach is finally healing, although I am still taking the meds. We enjoyed our family Christmas time yesterday, because one of our daughters had to work on Christmas. We just treated yesterday as if it were the 25th and exchanged presents and enjoyed being together.

I did the same thing I did for Thanksgiving – I did not worry about calories or glucose levels. It was a nice break from my usual diet, and I thoroughly enjoyed eating some of the forbidden foods that I love so much. My glucose numbers were high, but not really too high. I think I’m gradually resolving the diabetes problem as I continue to slowly lose weight. My target is to eat about 300 calories each day less than I actually need, which means I would lose a pound about every 10 days. I’ve been graphing my weight on Fitday.com, as well as keeping up with my calories there. That’s been a great motivational help.

I’ve not had any more problems with tics and twitching, since I added a half pill to each dose of Primidone. But I try really hard not to let myself get stressed or upset, and for the most part I’ve been successful.

We’ve had a great time helping people find their childhood lovies and backups and replacements for their children’s lovies. It’s very gratifying, and I think it has a lot to do with the great Christmas mood I’ve been in this year.

So I’m looking forward to 2010, and expecting to be in better health by this time next year!

On Higher Glucophage Dose for Awhile Now

Day by Day with a Movement Disorder Posted on by 4

I’ve been on the double dose of Metformin (Glucophage) now for about 2 weeks, and it has definitely helped with the fasting blood glucose levels I test for first thing in the morning. I’m not doing so well, however, with the after meals tests for lunch and supper. I’ve even had some high readings when I’ve eaten the same thing I’ve had other lunches with good test results. It’s very discouraging, and I’ve begun to have bouts of depression over it. Hubby is extremely supportive, but it upsets him so much when I express the feelings of depression that I try to keep such comments to myself as much as I can, or, like here, vent on this blog. Right now it feels as if I’m never going to be able to eat a biscuit or have even a small helping of Italian food ever again, let alone a pizza! Desserts are off limits, too, unless I make them myself with artificial sweetener … and I don’t bake!!! I basically don’t cook, really, as hubby enjoys fixing lunch far more than I ever did. And I usually have something microwaved or canned soup for supper.

I get the most discouraged when we eat out. It’s awfully hard for me to find anything to eat that isn’t going to send my blood glucose too high, or get me off my diet, or set off my GERD. We ate at Waffle House the other night, and I just knew I was going to do OK, because I ordered a ham and vegetable filled omelet. I didn’t eat the grits, but I did eat the toast, and that was a mistake. Not only did I have a high reading afterward, but the omelet sat heavy on my stomach all the next day. I was not feeling well at all! I suspect it was because of all the butter they use in cooking their omelets, plus it had lots of cheese in it, which I’m not supposed to eat. Next time I’ll have to get one with minimum cheese and see how I do. Between watching my carbs and my calorie intake, and taking into account my lactose intolerance and my GERD … well, let’s just say that there’s not much left I can eat! LOL!

My knee is still bothering me, and that’s limiting my desire to exercise somewhat, plus it’s harder to make myself do it when I’m down in the dumps. I am doing the sets at least once a day on most days, and I go for Physical Therapy next week. I’m still losing a little weight each week, about a half pound a week. I broke 160 this week, which I’m very proud of. It will be several more days before I can call it 159, though, so I look forward to that milestone.

My continued weight loss has been good for counterbalancing my discouraged feelings about my diet. I’ll just have to keep on being proud of the weight loss, and try not to be so upset about the blood glucose readings. I think I can…I think I can…

Doc Says I’m Doing Great … but ………

Day by Day with a Movement Disorder Posted on by 9

I couldn’t stand it any more and made an appointment to see my Diabetes doctor earlier than scheduled. I’ve been so frustrated by so many test results that were more than he had told me to aim for that I felt like something surely could be done to improve things.

So, we went to the doctor Thursday, and he bragged on my 1200 calorie diet and thought I was “doing great” with my glucose numbers. (THAT certainly surprised us both!) But … in the very next breath he DOUBLED my dose of Glucophage! He said I could cut back on the blood testing to 3 times a day, too. Since the test strips are so expensive this is a big help. Medicare pays for 50 strips a month, and the rest has to be paid out of pocket, since my insurance doesn’t cover the test strips.

So far so good on all the testing I’ve done since doubling the dose of medicine, so I’m feeling optimistic that I will lose the weight and eventually leave this diabetes diagnosis behind. Right now I’ve lost right at 20 pounds!! Considering how ravenously hungry I was all the time before being diagnosed, when my glucose was out of control, this is great news!!!

Blood Sugar Aggravation Grrrrrrrrrrrrrrr!

Day by Day with a Movement Disorder Posted on by 2

Constant aggravation is how I’m feeling these days. There have been way too many days this month when my blood glucose level was higher than my doctor wants it to be, and with only a few obvious exceptions, I have absolutely no idea why.

I was scheduled for an appointment with him at the end of July, but I changed the appointment to this week.

I’m trying to read through the Atkins book for Diabetics, but it’s very detailed and is slow reading. It’s extremely well written, but I am taking it in in small increments. I’ve read quite a bit of what is presented from other sources, but this book seems to put all the puzzle pieces together quite well. I’m really not finding anything that I am currently doing incorrectly, so I don’t understand why I still keep getting so many high readings.

My biggest problem with reading something this involved is that I keep falling asleep. I plan to ask my Diabetic doctor if one of the meds he put me on causes daytime sleepiness, because that has been a real problem for me for some time now. I’m sleeping soundly all night long now, so it’s not because of insomnia that I’m falling asleep so easily. I feel like I need to apologize to our preacher, as I nod off during almost every sermon! LOL!!

I’ve been trying to “get a life”, too, and not spending as much time on the computer. There’s this book that I’m very interested in learning as much as possible from, plus we are both trying to learn how to sing Sacred Harp shape note music. And I’ve gone back to working Sudoku puzzles, as I felt my brain needed more stimulation. Now that the television is all digital we have lost some of the stations we used to watch, so we have more time for other endeavors.

I continue to lose weight slowly but surely, and it’s beginning to show up with clothes that are too loose. That’s encouraging. At the rate I’m going I could possibly lose 50 pounds by the end of this year! I’m doing pretty well at resisting sweets, enjoying fruit instead. And we continue to emphasize low carbohydrates in our diet where possible. Hubby’s losing weight, too!

So, I’ll continue to read my book, exercise daily, and watch what I eat. Hopefully he can tell me what else I need to do to stop all the high test readings and possibly make a prescription change that will help me stay awake.

Glucose Test Results Have Been High

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I’ve been very discouraged lately by a large number of glucose test readings coming out higher than my doctor wants me to have. The frustration comes, because I really can’t pinpoint anything I’m doing or not doing that is causing the higher than normal readings. I even checked the meter to be sure it was working correctly. My fasting tests first thing in the morning, as well as tests during the day, have been high more often than not for quite a few days this month, and almost every time for the last week.

I put in a call to my doctor’s office, but their system doesn’t give me a chance to speak to his nurse. I get put straight to voice mail, and then she usually answers the next day. I really don’t like that system. I end up staying close to the phone for way too long, and then, like Friday, I’m not home when she calls back. She said she didn’t understand what I wanted, so my message was a complete waste of time. That’s certainly adding to my frustration. I was impressed with the doctor, but I’m sure not impressed with his office system.

I’ll call the office again tomorrow and try to get an appointment, since trying to deal with it over the phone is so difficult. He may say there’s nothing to be concerned about, or he may want to change my prescription to a higher dose or add a different med. All I can do is wait until tomorrow and hope I can actually speak to his nurse. Otherwise, I make an appointment for no telling when.

This is bad enough. I hate to even imagine how frustrated I would be if President Obama gets his way, and we have nationalized health care!! I’ve written my Representative and Congressman expressing my concerns about the quality of care available under a universal health care system. There was a story on the news not long ago about the VA not properly handling colonoscopy equipment and causing 28 people to contract HIV or hepatitis, or both!!! The VA is a perfect example of what national health care would be like, except it would be worse!!!

I’m continuing to log in everything I eat, and I’m managing to stay pretty close to 1200 calories a day, plus exercising, so the weight continues to ever so slowly drop off. I estimate I’m losing a little less than a pound a week, which hopefully means I will find it easier to keep it off. It might even mean a little less flabby skin when I finally lose the 50 pounds I have set as my goal for next summer. I’ve lost 17 so far, and I’m very pleased with that.

New Diabetic Shoes, Working Puzzles, and Brain Fog Blues

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I came home with my new pair of Diabetic shoes last Thursday, and in some ways I like them and in some ways I don’t. I chose a Velcro closure, which I have never worn before, and that, in hindsight, was probably a mistake, since lace up shoes allow for more adjustment across the ball of the foot.

Even though my foot measured as average width, I am finding it difficult to adjust to the tight feeling across the widest part of my left foot. I’ve been patiently breaking them in, but getting a little discouraged. So, I took the amazingly comfortable special insoles out and put the original insole back in. Those are not as thick, but the shoe feels much better. Maybe after I’ve worn them for awhile I will be able to put the super cushion ones back in.

Medicare and my supplemental insurance paid for them, plus enough insoles to change them out every quarter. I figured since I couldn’t get much help with the testing supplies I’d save the money for a new pair of shoes that I needed anyway, and use that savings on test strips.

I continue to lose weight a little at a time, and I’m very pleased with that. I’ve lost 16 pounds since mid April, the first weight I’ve been able to lose since I was diagnosed with Parkinson’s and put on those meds. The change from PD meds to Essential Myoclonus meds didn’t help that problem, either. As my weight climbed I was more and more at risk for diabetes, particularly since it runs in my Daddy’s side of the family. It was not until my glucose levels were under control that I was able to lose weight, no matter how hard I tried. Adding the discipline of checking blood glucose levels 5 times a day on top of my already busy medicine schedule has just meant more to remember, but it’s pretty much routine by now. I still forget occasionally, but considering how bad my memory is, I think I’m doing quite well.

I guess my brain function is the real problem I continue to deal with. I have spells of being extremely forgetful, plus hubby and I have come to realize that I don’t process visual information very well any more. He will see a bird outside, tell me where to look, and it will often be a very long time before I can finally “see” it. I can’t really explain it, but I do know it’s not normal. I’ve made a few mistakes sending out stuffed animals or dolls that were similar to the one someone had ordered, not noticing the differences until they wrote to say they did not get the right toy. Very aggravating – and it costs us money!!

This Sunday I saw a name on our prayer list, immediately thinking it was someone in our Sunday School class who was having surgery. I embarrassed myself in front of everybody asking how she was doing. Of course she had no idea what I was talking about. I know both of these ladies very well, but for some reason my brain just ignored the last name, as if I didn’t even see it at all. I recently had my eyes examined, so I know it’s more a processing glitch than a vision problem.

Things like this seem to be happening more and more often, and I’d be lying if I said it doesn’t bother me. My mother had Alzheimer’s and my Granddaddy probably did, too, so it’s disconcerting, to say the least.

Well, that’s enough whining for one day. Let me get back to something more optimistic. I am very proud of my weight loss and the efforts I am taking to learn more about proper eating habits and diabetes in general. I just need to keep my eye on that 50 pound weight loss goal, and I know I can do it!

I’ve gone back to working Sudoku puzzles in an attempt to help with my strange brain glitches. I’ve also been playing with an old Rubic’s Cube we still had, too. And I plan on finding some more brain puzzles I can work on the computer.

Normal Days Continue … Well, Almost

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For the most part I am continuing to have what I think I remember normal days were like ;). It’s been so long, way before we started taking care of parents, that I’m not really sure I would recognize a normal day if I saw it. LOL!!!

I am continuing to check my glucose levels 5 times a day, but I’ve had more high readings of late than I did last month. I’ve even had a lot of morning fasting readings that were high, before I’ve eaten anything for the day. I have been trying to eat more of the meals that I really enjoy, and I’m finding that even when I think I’m cutting portion size and being reasonable with my choices – my glucose reading says I have not succeeded.

I am continuing to lose weight slowly but surely – down 13 pounds from when I found out I was diabetic back in April. I have a long way to go, and expect it to take until Summer of next year to reach my goal. I continue to use FitDay to log in my food intake for each meal, plus keep track of my activity level. I’m very impressed with this site, as I have a graph of my Weight Goal, and I can follow along to see if I am on track to meet the goal I set to lose 50 pounds. The graphs make it easy to see that I am doing just what I wanted to do, and that’s encouraging. It’s so much easier to stay motivated when I can find some areas that I am doing well on. It makes it easier to make myself be careful with my eating habits, too. Obviously this is not a short term diet I am on. I want to lose it slowly enough so that it will stay off, and if I’m lucky, I won’t have as much loose skin, either. I have plenty of time to get my eating habits in line with what is the most healthy for me.

I have an appointment this week to get my first pair of diabetic shoes from my Podiatrist. Medicare will pay for one pair a year, which helps to offset the pitiful amount they pay toward all the glucose test strips I’m having to buy. I needed a new pair of shoes anyway, although these are not in a style I would have chosen on my own. If they feel good, and I stop ending up with the huge callouses I’ve had trouble with for years, plus take the pressure off the tops of my big toes, I’ll be happy with the trade-off between style and comfort.

We’re supposed to get our car back this week from the body shop, and we’re both hoping it will be sooner, not later this week. These last few weeks having to use the van (AC does not work) has not only been Alabama hot, but it’s taking its toll on my muscles, climbing up each time I get in. There have been a few yard sale stops that I just stayed in the van and let hubby go look, just because I was too tired to haul my heavy self back up in the seat. LOL!!!

I continue to read everything I can find of interest about diabetes, but I’ve probably read most of the important stuff by now. And, since I don’t cook, I’m not interested in the recipe stuff, which is most of what is out there. Hubby takes care of lunch when we eat at home, but our meal consists mostly of a large raw spinach and vegetable salad, with canned beans and hard boiled eggs as our protein sources. We’re not vegetarians, as we eat meat when we eat out, but we don’t each much meat at home. That helps us keep our food shopping budget in good shape, and makes it easier to always have lots of fresh fruit in the house. We have added black beans and kidney beans to our diet as a result of reading a diabetes article about how they have a low Glycemic Index and lots of fiber. I do still try to get a lot of fiber each day to help with my elimination difficulties.

The Glycemic Index of foods gives a measure of how much a food will raise the glucose level, and how quickly it will do it. Every food that has been tested with real human beings is compared to the rapid glucose increase when pure glucose is eaten. It’s a complicated process to get the numbers, but, once the numbers are available for a food, it is very helpful in making food choices. For instance, white potatoes have a high Glycemic index, which means blood glucose levels will jump quickly after potatoes are eaten. So … no more white potatoes for me. The better foods in the list have a Low Glycemic Index, and don’t jump the testing readings up much at all. Most raw vegetables fit that category, although a few starchy ones, such as corn and potatoes don’t.

So, I’m continuing to read and learn, trying to develop healthy eating habits that I can continue from now on, and learning which foods send my glucose readings too high. I’m committed to taking care of myself, and I expect to be diabetes free within a year.