Daddy has been hallucinating for the last several days off and on. At times he doesn’t realize he is at home, and starts wanting to know when we’re going home. Although he is blind, I’ve noticed him looking around at things with this wide eyed expression on his face. He’s obviously seeing things that aren’t there. And, he’s talking about them, too! Normally, Daddy is a very quiet person, but he’s been chatting away about these children playing in the living room and the trucks in the bedroom. No amount of reassuring him that it’s not real will convince him of it. Up until yesterday, the hallucinations seemed harmless enough, but were a definite sign that something had made a down turn.
Yesterday morning was the worst I’ve had yet with Daddy. Thank goodness my DH got to the house just about the time I was going to get him up. I found him lying astraddle of the bed, with legs partway off, having made an unsuccessful attempt to get himself out of bed. His bottom was much too close to the edge of the mattress to have him sit up, so we had to try to maneuver him back in the bed. All the while, he’s loudly protesting that the trucks are coming into the bedroom, and he’s struggling against us, trying to get up. We finally managed to get him seated at the foot of the mattress with enough spare room to be reasonably safe.
The question was, now that we had him there, how were we going to get him up, when he was exhausted. Thank goodness I’ve had prior experiences I could fall back on! We ended up taking the arm off the wheelchair and making a difficult sideways transfer of about 12 inches!! He’s just a dead weight and doesn’t help at all. By the time we got him in the chair, I was already worn out. Thank goodness I had taken my Zelepar earlier, before he got up!!
By the hardest, we managed to get him partially dressed, but there was no way to pull up his pants or change him out of his night Depends into fresh ones. With one more gigantic effort, we managed to lift him up enough to get the wet Depends off and a dry one under him, partially taped up on the sides. That was just going to have to do for then. DH rolled him into the kitchen, with his trousers down at his ankles, and I covered him up the best I could.
His kitchen table is too low to let the arms of the wheelchair go under it, so he tried to eat breakfast farther away from the table than he’s used to. He was still hallucinating and talking about the hole in his bedroom wall where the trucks had come through. He ate very little, but he did let me feed him a few bites. Luckily, we have the Rhoho cushion that Mama had after she broke her hip. Sitting on that is like sitting on air, and it’s designed to prevent pressure sores. So we stood him up one last time for the day, and managed to get it under him. We ended up leaving him in the wheelchair all day, for safety’s sake.
DH stayed longer than usual last night, so he could help me get Daddy to bed. It was not easy, but it was nowhere near as bad as getting him out had been.
Frances came today, and thank goodness Daddy was lucid this morning! Since I knew what to expect today, she and I changed the Depends and got him partially dressed before we ever let him get up. That made things a lot simpler. We stuck around and helped with him until she had him ready for breakfast. Then we got out of there for our Date Day. We both really needed to be away from all that nervous tension for awhile.
He’s still really weak tonight, but he’s beginning to understand a little of what is expected of him when he needs to make a transfer. That helps a lot.
So I write this tonight, not knowing who I will deal with tomorrow – my Daddy, or the fellow with all the trucks and children. I’ll find out in the morning, won’t I?