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Daily Journal with Mitochondrial Myopathy

Day by Day with a Movement Disorder

My Journey with a Mitochondrial Disease - "But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

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Diagnosis in 2006 - Parkinson's Disease and Peripheral Neuropathy, then in 2007 - Essential Myoclonus. Finally in 2011, after a muscle biopsy, I was diagnosed with Mitochondrial Myopathy as well as Peripheral Neuropathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Tag Archives: Yesterday’s Memories

Praise GOD from Whom All BLESSINGS Flow!!!

Day by Day with a Movement Disorder Posted on June 14, 2008 by DBMay 30, 2016  

I can’t praise God enough for how I’ve been lately. I really am doing great, and it’s wonderful to be able to say that. Some days I don’t have any abnormal movements at all, and on others I have only tolerable ones. I have been on cloud nine now for a couple of weeks, and it looks like I’m here to stay.

I have noticed that as I become more active and expend more muscle effort that the medicine wears off sooner in the evenings. The Movement Disorder doctor said to call him back in two weeks, and he would discuss raising the daytime dose maybe a half pill at that time. Sounds good to me. He just doesn’t want me to zombie out on the Primidone, and I don’t want that, either. He mentioned physical therapy to help with the slow walking, but that just does not seem necessary to me. I know how to be safe, and as I feel better I am naturally increasing my physical activity. I’m so used to listening to what my body is telling me that I can judge pretty well when it’s time to quit.

My house certainly appreciates the extra attention I have been able to give it lately! There’s plenty more to do, though. I have about two years of clutter to wade through. When you feel as bad as I have and as unsteady as I have it’s just easier and safer to ignore a lot. Hubby has kept us in good meals and clean clothes, but the “stuff” has piled up.

We celebrated our 44th Wedding Anniversary yesterday. I wrote a long post about it on our Yesterday’s Memories blog, so I won’t repeat that here. The fantastic thing is that even though I was exhausted at night from all we did during the day the last two days, I feel fine today. My muscles are definitely adjusting to more activity.

So I leave this post with a positive outlook and a heart full of thanksgiving!!

Praise God from who all blessings flow! Whooopppieeeeeeeeee!!!

Posted in Quality of Life | Tagged difficulty walking, exercise, exhaustion, gait, God, house cleaning, Movement Disorder, prayer, Primidone, Quality of Life, symptoms, Tardive Dyskinesia, Thanksgiving, tremors, Yesterday's Memories | Leave a reply

102 Years – Quite a Lifetime!!

Day by Day with a Movement Disorder Posted on March 19, 2007 by DBMay 28, 2017 2

Those of you who have been so kind to send your hugs and prayers to us while we tend to Daddy might be interested in reading what I’ve posted on my Yesterday’s Memories blog today.

Posted in Uncategorized | Tagged 102 years old, care giving, Quality of Life, Yesterday's Memories | 2 Replies

BLOG VILLAGE Goes Gonzo! Family Blog Carnival

Day by Day with a Movement Disorder Posted on January 16, 2007 by DBOctober 7, 2019 4


I’m entering our BLOG VILLAGE Family Blog Carnival with a post from my blog, Yesterday’s Memories. I have a pretty good idea which one I’m going to submit, but I’m open to suggestions, if you see a post you think would be a good one.

Any blog that LINKS TO this blog can enter, too!

The THEME is “A post about Family”.

Carnival entries may be submitted NOW. The DEADLINE for entries is Thursday, Jan. 25th, at 11:59PM EST.

Here are the RULES for our FAMILY BLOG CARNIVAL:

Blog MUST belong EITHER to a BLOG VILLAGE member OR link directly TO a BLOG VILLAGE Blog.

Only 1 entry per blogger.

Only English language posts will be accepted.

No posts with titles, or with pictures, containing profanity, or of a sexual or suggestive nature, will be accepted.

HOW TO SUBMIT AN ENTRY:

1. Pick out a post that you feel is about FAMILY. That should provide you with a lot of flexibility.

2. Send the URL for that post, along with the post’s title, to:

kilroy60@gmail.com

If you are entering as a blogger who links TO a Villager —

Please note: if you are linked to more than one Blog Village member, please indicate with which blog you want to be grouped in the Carnival.

I’d love to see this Carnival have a lot of participants, so how about taking a look at your blog to see if YOU have a good post to enter. All you need to do is either be a member of BLOG VILLAGE (Apply Here) OR Link to any BLOG VILLAGE blog. Then, be sure to follow the rules and submit your post before the Jan. 25th deadline.

I look forward to reading your post!!

Posted in Uncategorized | Tagged Blog Carnival, BLOG VILLAGE, Family Blog Carnival, Yesterday's Memories | 4 Replies

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Radial Neuropathy Resources

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