I wanted to pass this comment along, so more people will be aware of Movement Disorders in general, and particularly here about Dystonia.
I am working with the Bachmann-Strauss Dystonia and Parkinson Foundation to ensure that more research is done to find the cure for Dystonia.
Christian Hoff, Tony Award Winner from Jersey Boys, teamed up with The Bachmann-Strauss Foundation to speak out about Dystonia and filmed this video.
Anything you can do to help would be much appreciated, whether it be a story or even just a link to the video. Thank you so much!
Dystonia is not what I have been diagnosed with. The current diagnosis for my Movement Disorder is Essential Myoclonus. I am very fortunate that Primidone does a fairly good job of controlling my symptoms. But I can certainly relate to anyone whose body simply will not do what they want it to do.
I looked through quite a few other YouTube videos, and this one shows a lady living with Dystonia, but I liked the video because it is very positive.